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Advocacy Posts

Jillian and Ava

Jillian and Ava’s Story

I have a 7-year-old daughter named Ava, who lives with cystic fibrosis (CF). She is hilarious, very sassy and constantly loves to put on a show…

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Advocacy Brief – Issue #11

Welcome to your June 3, 2022 edition of the Advocacy Brief Going further to ensure access to Trikafta for all eligible Canadians CADTH’s draft recommendation…

Audrey

Audrey’s Story

I’m a young woman of 22, excited by the world around me and the people I love.   My mother, Manon, and my father, Jacques,…

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The Advocacy Brief – Issue #10 

Welcome to your March 23, 2022, edition of The Advocacy Brief.    Trikafta Update  With Health Canada expected to approve Trikafta for 6-11 year olds in April…

Advocate Amanda with Trikafta

Advocate Spotlight – Amanda Bartels

Name: Amanda BartelsProvince: AlbertaConnection to CF: Woman (wife and mom) with CFYears advocating: Advocating for just over 2 years Why did you get involved with…

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The Advocacy Brief – Issue #9

Welcome to your February 1, 2022, edition of The Advocacy Brief. Updates on Access to Trikafta Looking ahead to 2022 2022 is shaping up to…

Lorna McEwan with Trikafta

Trikafta has given me a second lease on life.

Lorna McEwan is a 61 year old Cystic Fibrosis Warrior and advocate who started on Trikafta in 2021. This is an account of her experience…

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The Advocacy Brief – Issue #8 – December 20, 2021

Welcome to your December 20, 2021, edition of The Advocacy Brief. Cystic Fibrosis Canada’s Advocacy Team wishes you and your family a safe, healthy and…

Advocate Spotlight – Jen Harbin

Name: Jen Harbin Province: Nova Scotia Connection to CF: Daughter with CF Years advocating: 2 years Why did you get involved with CF Canada’s advocacy…