Advocacy Posts
Jillian and Ava’s Story
I have a 7-year-old daughter named Ava, who lives with cystic fibrosis (CF). She is hilarious, very sassy and constantly loves to put on a show…
Advocacy Brief – Issue #11
Welcome to your June 3, 2022 edition of the Advocacy Brief Going further to ensure access to Trikafta for all eligible Canadians CADTH’s draft recommendation…
Audrey’s Story
I’m a young woman of 22, excited by the world around me and the people I love. My mother, Manon, and my father, Jacques,…
The Advocacy Brief – Issue #10
Welcome to your March 23, 2022, edition of The Advocacy Brief. Trikafta Update With Health Canada expected to approve Trikafta for 6-11 year olds in April…
Advocate Spotlight – Amanda Bartels
Name: Amanda BartelsProvince: AlbertaConnection to CF: Woman (wife and mom) with CFYears advocating: Advocating for just over 2 years Why did you get involved with…
The Advocacy Brief – Issue #9
Welcome to your February 1, 2022, edition of The Advocacy Brief. Updates on Access to Trikafta Looking ahead to 2022 2022 is shaping up to…
Trikafta has given me a second lease on life.
Lorna McEwan is a 61 year old Cystic Fibrosis Warrior and advocate who started on Trikafta in 2021. This is an account of her experience…
The Advocacy Brief – Issue #8 – December 20, 2021
Welcome to your December 20, 2021, edition of The Advocacy Brief. Cystic Fibrosis Canada’s Advocacy Team wishes you and your family a safe, healthy and…
Advocate Spotlight – Jen Harbin
Name: Jen Harbin Province: Nova Scotia Connection to CF: Daughter with CF Years advocating: 2 years Why did you get involved with CF Canada’s advocacy…