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Volunteer Advocate
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Advocacy Posts

Advocating for Change: Together we’re Stronger

Cystic fibrosis is a fatal disease that affects those who live with it in common yet unique ways. Currently, there is no cure. At Cystic…

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Advocacy in Action: An Open Letter to the Right Honourable Justin Trudeau: Please Save my Life

Dear Prime Minister Trudeau: My name is Melissa Verleg and I am a 36 year old mother of two young boys from Vernon. I live…

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Whatever it takes; for myself, for my brother, and for everyone else living with CF

For most people, a cough is a temporary inconvenience. For me, and the thousands of other Canadians living with cystic fibrosis (CF), a cough is…

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Whatever it takes; for my daughter not to face this alone

Living in Canada, where many people receive the health care they need, is a privilege. But many people receiving care is not everyone – and…

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Whatever it takes; to be a mom for as long as I can

Many of us can relate to the daily stress and worry that comes with being a parent; scheduling play dates, juggling appointments, daily chores, making…

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Comments round up: CF Canada answers your questions about a recent Orkambi update

Cystic Fibrosis Canada recently shared an update about changes to public access to Orkambi in various provinces. The governments of Saskatchewan, Alberta and Ontario announced…

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A Forum on Rare Diseases in Quebec

On February 22, in Montreal, Cystic Fibrosis Canada, in collaboration with the Alliance des patients pour la santé and the Regroupement québécois des maladies orphelines (RQMO),…

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Sandy Stevens: I needed answers and the answer was advocacy

My 12-year-old daughter who has Cystic Fibrosis (CF) has been in the hospital many times with longer stays each time. They’re trying all the support…

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The hope for Orkambi is strong all across Canada

Summer time – it brings so much hope for our family! The hope for new experiences at camp, hope for sunny days at the beach,…

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