While we can’t gather in person to mark this important milestone, we are doing something different and forward-looking—something that still brings us together, but in a different way. This year, we are creating a video time capsule.
Submit your video time capsule
We would be grateful if you could submit a short video today noting your advice for future families and individuals who are impacted by cystic fibrosis (CF). You can use our easy online tool to capture your video message. We’ll guide you through it step-by-step. It only takes a few minutes. We will compile these videos into a montage, and share them with you in the new year.
Ready to record your own video for the video for the time capsule? Get started by clicking the link below:
Please note, video submissions will be closed on December 11, 2020.
Since our founding in 1960, we have worked closely with the community to change the cystic fibrosis story. In 1960, children born with cystic fibrosis were not expected to reach school-age. Now, the estimated median age of survival is 52.1 years old. While there is still no cure for CF, over the last 60 years we have witnessed the discovery of the CF gene by Cystic Fibrosis Canada-funded researchers, the development of life-changing drugs like Kalydeco, Orkambi and Symdeko, the implementation of mandatory newborn screening across Canada and a new breakthrough drug called Trikafta. While we have seen great progress and people living with cystic fibrosis are living longer and healthier lives, there is still much work to be done. We must go further.
We would like to thank our founding families, the Summerhayes and the Mouton’s for their leadership and drive for change over the years.
March 4th 2021
Webinar series | Trikafta : How to advocate for access
Join us on March 4th to learn more about the canadian political environment and how you can advocate for access to Trikafta. In this webinar, an expert from Hill & Knowlton in the drug-approval political environment will explain Trikafta’s position in the system and the road ahead before the treatment is in the hands of those who need it.