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Volunteer Advocate

Celebrating 60 Years

Over 60 years ago, Cystic Fibrosis Canada was founded by the parents of children living with cystic fibrosis, bringing hope to the many CF families in Canada. Since then, Cystic Fibrosis Canada has dramatically changed the cystic fibrosis story. We have advanced research and care that has more than doubled life expectancy and we have grown into a leading organization with a central role engaging people living with cystic fibrosis, parents and caregivers, volunteers, researchers and healthcare professionals, government and donors. We work together to change lives for the 4,344 Canadian children and adults living with cystic fibrosis through treatments, research, information and support. Despite our remarkable progress together, we are not yet done. We will keep pushing, keep going further until all people with cystic fibrosis can and do experience everything life has to offer — and enjoy everything life has to offer.

We would like to thank our founding families, the Summerhayes and the Mouton’s for their leadership and drive for change over the years.

In honour of our 60th anniversary, we asked our community members to share their advice for future families impacted by cystic fibrosis. Their submissions demonstrated the hope, strength, determination, and resilience of the cystic fibrosis community.