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Adult Cystic Fibrosis Advisory Committee

The Adult Cystic Fibrosis Advisory Committee (ACFAC) is a standing committee of Cystic Fibrosis Canada. Members include up to 15 adults with cystic fibrosis from across the country and two healthcare professional advisors. The committee provides perspective and advice on CF-related issues, and advocates for public policies and programs to help people with cystic fibrosis. Members also foster and support an engaged and knowledgeable CF community.

Are you an adult with CF in Canada? Would you like to contribute to the work of Cystic Fibrosis Canada on issues important to adults living with CF? If interested, please consider applying to be part of our Adult CF Advisory Committee. For more information, please contact:  

Resources Developed in Partnership with the ACFAC

Cystic Fibrosis Canada is pleased to offer the following resources that were developed in collaboration with the Adult Cystic Fibrosis Advisory Committee.

In partnership with our Adult Cystic Fibrosis Advisory Committee (ACFAC) we have developed a guide called Cystic Fibrosis: Your Guide to Transitioning from Paediatric to Adult Care for people who are about to or are currently going through their transition of care. This guide provides you with the tools you need to take an active part in ensuring a smooth transition, such as:

  • Considerations before your first clinic visit
  • Questions to ask your new clinic team
  • Self-management tools
  • Tables to keep track of your pharmacy information and medication coverage.

Cystic Fibrosis Canada’s Adult CF Advisory Committe hosted a webinar series in 2019-2020 that explored different aspects of fertility and family planning. The eight part series discussed various topics, to view all previous webinars visit our Youtube playlist.

With the ACFAC we designed and developed resources to help support you while being a parent and living with cystic fibrosis. For more informations, visit the Parenting with CF page on our website.

Stay tunned for more resources to come.

Brenda Chambers-Ivey

Brenda lives in Kenora, ON with her husband John. She has a passion for life, especially for family, community, animals, travel, the arts and supporting the Cystic Fibrosis community.

Julian Tam – Respirologist

Julian Tam is a respirologist specializing in cystic fibrosis and lung transplantation. He practices in Saskatoon, SK.

Kate Gent – Nurse Practitioner

Kate is a Nurse Practitioner at St. Michael’s Hospital in Toronto, ON. She has previously worked in the paediatric program and has expertise in transition from paediatric to adult CF care. She provides general CF management with a focus on CF related diabetes, fertility counselling and works closely with the transplant program helping with pre and post-transplant management.

Kim Wood

Kim lives on Vancouver Island, BC with her husband and French bulldog. Kim worked as a Registered Nurse for 7 years but now focuses on maintaining her health and advocating for issues important to people with CF. She volunteers for her local CF chapter in Campbell River and is a member of the Patient Advisory Committee for the CF Clinic at St. Paul’s Hospital.

Megan Parker

Megan Parker lives in Calgary, AB with her husband and two 3-year old sons, Charlie and Desmond. She works as an Occupational Therapist.

Mike Amato

Mike Amato is 30 years old and has two copies of the F508del mutation. He can proudly state that he has cystic fibrosis because living with CF has taught him valuable lessons throughout his life. Mike works as a Medical Laboratory Technologist and is also a 2nd degree blackbelt Tae Kwon Do instructor. He recently completed a Master’s Degree of Medical Science specializing in Pathology.