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Volunteer Advocate

Adult Cystic Fibrosis Advisory Committee

The Adult Cystic Fibrosis Advisory Committee (ACFAC) is a standing committee of Cystic Fibrosis Canada. Members include up to 15 adults with cystic fibrosis from across the country and two healthcare professional advisors. The committee provides perspective and advice on CF-related issues, and advocates for public policies and programs to help people with cystic fibrosis. Members also foster and support an engaged and knowledgeable CF community.

Are you an adult with CF in Canada? Would you like to contribute to the work of Cystic Fibrosis Canada on issues important to adults living with CF? If interested, please consider applying to be part of our Adult CF Advisory Committee. For more information, please contact: advocacy@cysticfibrosis.ca  

Brenda Chambers-Ivey

Brenda lives in Kenora, ON with her husband John. She has a passion for life, especially for family, community, animals, travel, the arts and supporting the Cystic Fibrosis community.

Chelsea Gagnon

Chelsea is a 27 year old university graduate with CF. She is new to the advocacy community, but is looking for ways she can help positively impact the CF community at large. 

Emily Stoutenburg

Emily Stoutenburg lives and works as an Executive Assistant in Saskatoon, SK. She is involved with the local CF Chapter, and a local fundraiser called the 65 Roses Gala.

Julian Tam – Respirologist

Julian Tam is a respirologist specializing in cystic fibrosis and lung transplantation. He practices in Saskatoon, SK.

Kate Gent – Nurse Practitioner

Kate is a Nurse Practitioner at St. Michael’s Hospital in Toronto, ON. She has previously worked in the paediatric program and has expertise in transition from paediatric to adult CF care. She provides general CF management with a focus on CF related diabetes, fertility counselling and works closely with the transplant program helping with pre and post-transplant management.

Kelsey Lett

Kelsey Lett is a 25 year old cystic fibrosis patient who was diagnosed at age 2, and has had countless doctor’s appointments and hospital admissions. In her spare time, she volunteers for the Champlain Community Care Access Centre in Ottawa.

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Kim Wood

Kim lives on Vancouver Island, BC with her husband and French bulldog. Kim worked as a Registered Nurse for 7 years but now focuses on maintaining her health and advocating for issues important to people with CF. She volunteers for her local CF chapter in Campbell River and is a member of the Patient Advisory Committee for the CF Clinic at St. Paul’s Hospital.

Lee Anna Sweeney

Lee Anna Sweeney is 28 years old from Toronto, ON and was diagnosed with Cystic Fibrosis before her first birthday. CF has always been a part of her life, but she tries not to let it be her only life. She hopes that by sharing her experiences living with Cystic Fibrosis, she can assist in the development of care for those afflicted. It is her way to not let her challenges be in vain.

Lisa Legros

Lisa was diagnosed at the early age of 15 months. As a child growing up in the late 60’s, her family was told that she would not live past six years of age. Well as destiny has it, she did. Then she was told fourteen years would be her next milestone, and so on.  

Today, she celebrates her 50 years.  Lisa has been a proud member of the CF Adult committee since 2009.  Life with CF is not without its daily challenges, and for the past two years now Lisa has been dealing with CFRD as well. 

Lisa is privileged to be doing what she loves. She is a golf columnist for the Times & Transcript newspaper and also a certified CGTF/USGTF golf instructor. Golf has been of great benefit to her as a CF patient. The sport has now become her passion.

With the continued work done by Canadian Cystic Fibrosis Canada, Lisa hopes to continue to maintain a high quality of life for many more years to come.

Meaghan MacRury

Meaghan is 24 years of age and was diagnosed with CF when she was 7 months old. She has very supportive family and friends, and views CF as an obstacle, not a dead end! Her motto is to take life one breath at a time!