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Volunteer Advocate
cystic fibrosis canada volunteers at a Walk

Elevate

We believe that the needs and perspectives of people living with cystic fibrosis (CF) should always inform our work, as they are firsthand experts on living with this disease.That is why we have launched Elevate, a volunteer initiative that places our community’s voices and experiences at the centre of our work.

Elevate enables Canadians diagnosed with cystic fibrosis and their families to share with CF Canada their experiences, perspectives, and priorities, all of which will help guide cystic fibrosis research, care, support and programs. Each person’s experience with CF is unique and we warmly welcome all in the community, including those who we have not yet met, as this diversity will only strengthen our work and community.

Elevate members will be offered opportunities to virtually provide input on CF Canada’s direction and initiatives through surveys, polls and focus groups as well as participate in third party CF research.

The program is flexible, which means that Elevate members can participate in input opportunities as often or as little as they want! We value our community’s opinions and time and in turn, we will keep members updated on how their input is informing our work.

By participating in Elevate, you will have opportunities to share your story, elevate our work and help shape the future of the disease for all Canadians living with CF.


JOIN ELEVATE NOW

Frequently Asked Questions

Elevate is a virtual volunteer initiative for people impacted by cystic fibrosis. Feedback and responses from Elevate members will help guide cystic fibrosis research, care, support and programs.  

Elevate empowers people who live with cystic fibrosis, or who have a loved one with cystic fibrosis, to make an impact on the future of the disease. By sharing your first-hand experiencesneeds, perspectives, priorities, opinions, and thoughtsyou’ll help shape the direction of our work.   

By being an Elevate member, you will also get the chance to have an insider perspective on CF Canada’s work, and hear first-hand how the community’s input is guiding our work.

Those living with or impacted by cystic fibrosis in Canada who are 13 years or older, including: 

  • Youth and adults living with CF 
  • Parents and caregivers 
  • Spouses 
  • Siblings 

Registration only takes a few minutes, sign up here! 

The program is flexible, which means that Elevate members can participate in input opportunities as often or as little as they want. Participation could range anywhere from an online survey to a virtual focus group. You can choose to engage in whichever opportunities interest  you and work for your schedule. There is no minimum participation requirement. 

The types of input opportunities you will receive will differ depending on the work Cystic Fibrosis Canada is doing and, in some cases, will be dependent on the information you provide during registration. Some opportunities could be tailored to a region or customized to a certain group. Surveys, focus groups, committees, document reviews are some examples of what these opportunities might include.  

As a member of Elevate, you can expect to receive a quarterly update on projects that Elevate members have provided their input on. We intend to keep you updated as to how we use your feedback to inform our work!

Use of your personal information is subject to Cystic Fibrosis Canada’s privacy policy and will be kept confidential. The personal information we collect from you for this community input initiative will be used internally to develop a better understanding of our community’s needs and to improve our stakeholder engagement. Your personal health information may be used in this program to target our communications and input efforts appropriately. Your personal information will not be disclosed outside our organization except with your consent or in accordance with the requirements of our privacy policy.  

We’d be happy to answer your questions, please reach out to elevate@cysticfibrosis.ca 

Generously supported by

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