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Volunteer Advocate

News

All media inquiries can be directed to Jennifer Stranges, Associate, Corporate Communications at mediarelations@cysticfibrosis.ca or by calling 1-800-378-2233 ext. 290.


Inkbox Releases Cystic Fibrosis Inspired Temporary Tattoo Collection
March 5, 2019

Cystic Fibrosis Canada is excited to announce that temporary tattoo company inkbox has released a collection inspired by cystic fibrosis (CF) and the upcoming film Five Feet Apart. 50 percent of sales will be donated to the Cystic Fibrosis Individualized Therapy program (CFIT), a research partnership with SickKids.

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SASKATCHEWAN, ALBERTA AND ONTARIO ESTABLISH CRITERIA TO PRESCRIBE ORKAMBI
February 27, 2019

TORONTO (February 27, 2019) – The governments of Saskatchewan, Alberta and Ontario have announced prescribing criteria for pediatric patients to qualify for public coverage of ORKAMBI on an exceptional, case-by-case basis. This announcement is the result of diligent advocacy work by Cystic Fibrosis Canada and the Canadian cystic fibrosis community. The decision comes three years after Health Canada approved the medication for use in Canada. 

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Cystic Fibrosis Canada Asks the Tough Questions
November 27, 2018

TORONTO (November 27, 2018) ― With the launch of its holiday giving campaign, Tough Questions, Cystic Fibrosis Canada (CF Canada) is asking Canadians to help answer the questions that people with cystic fibrosis (CF) can’t. The fundraising campaign will feature five Canadian families and individuals affected by the fatal disease and demonstrate how a simple question can hurt to hear when the future is unknown. But Canadians can help because the answer to each question is in a cure.

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Cystic Fibrosis Canada’s position on cannabis in the treatment of cystic fibrosis
October 17, 2018

TORONTO (October 17, 2018) –  Cannabis (also referred to as marijuana) has been available by prescription for a number of years in Canada, but with broader legalization, more interest has been raised on the subject.

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CADTH Makes Deadly Decision for Some Cystic Fibrosis Patients in Canada
October 4, 2018

TORONTO (October 4 , 2018) – Today, the Canadian Agency for Drugs and Technologies in Health (CADTH) has recommended that the cost of cystic fibrosis (CF) drug ORKAMBI not be covered by provincial drug programs. Cystic Fibrosis Canada wholeheartedly disagrees with the decision and cautions that this could have deadly consequences for some Canadians with CF for years to come.

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CARSTAR to Provide Travel and Accommodations for Cystic Fibrosis Study Participants
June 19, 2018

TORONTO (June 19, 2018) – Cystic Fibrosis Canada national partner, CARSTAR, will fund travel and accommodations for participants of the Cystic Fibrosis Individualized Therapy (CFIT) study. With CARSTAR’s generous support, participants with cystic fibrosis (CF) from across Canada will travel to The Hospital for Sick Children in Toronto (SickKids) to take part in the ground-breaking study.

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Cystic Fibrosis Canada Partners with NOGU
June 12, 2018

TORONTO (June 12, 2018) – Cystic Fibrosis Canada is pleased to announce its national partnership with Canadian based jewelry company, NOGU. Mario and Luca Lavorato, founders of NOGU and both diagnosed with cystic fibrosis (CF) at birth, have pledged to donate 50 percent of gross sales from the company’s Kite Collection to Cystic Fibrosis Canada.

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The Walk to Make Cystic Fibrosis History Goes to Machu Picchu
June 1, 2018

TORONTO  (June 1, 2018) – Cystic Fibrosis Canada’s largest fundraising event, The Walk to Make Cystic Fibrosis History, will go to new heights in 2019 with a trek to Machu Picchu in Peru. The week long journey begins on May 25, 2019 and is organized through Charity Challenge, the world's leading tour operator, running overseas fundraising challenges.

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Cystic Fibrosis Canada asks for more than hope
May 2, 2018

May 2, 2018 (TORONTO) – Cystic Fibrosis Canada (CF Canada) is launching a national campaign this May, Cystic Fibrosis Awareness Month, to call on the government to make life-changing medications accessible for those who need it. Currently, a life-changing medication called Orkambi has the potential to benefit 2,100 of the 4,200 Canadians who live with cystic fibrosis (CF). Unfortunately, without public funding, many people with CF cannot access it despite its approval by Health Canada and doctors prescribing it.

 

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Cystic Fibrosis Canada welcomes Kelly Grover as new Chief Executive Officer
April 24, 2018

TORONTO (April 24, 2018) — Cystic Fibrosis Canada’s (CF Canada) Board of Directors is pleased  to announce the appointment of Kelly Grover to the position of President and Chief Executive Officer (CEO) effective June 4, 2018.

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