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All media inquiries can be directed to mediarelations@cysticfibrosis.ca or by calling 1-800-378-2233.


Cystic Fibrosis Canada Commits over $2.1M in New Research Funding 
May 10, 2022

Six Research Grants, an Early Career Investigator Award and three Research Fellowships focus on CF Community’s Health Needs

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2021-2022 Impact Report
May 6, 2022
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18th Annual Walk to Make Cystic Fibrosis History Returns as an in-Person and Virtual Event
May 2, 2022

Cystic Fibrosis Canada asks participants to go #FurtherTogether for Canadians with cystic fibrosis  

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Health Canada approves Trikafta, transformational cystic fibrosis medication, for children aged six to 11
April 20, 2022

Cystic Fibrosis Canada calls on provinces, territories, and private insurers to immediately to fund Trikafta for all who can benefit 

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Cystic Fibrosis Canada Achieves Reaccreditation from Imagine Canada’s Standard Program
March 10, 2022

TORONTO (March 10, 2022) – Cystic Fibrosis Canada today announces that it has achieved reaccreditation under Imagine Canada’s Standards Program, being an accredited member of the Standard Program since October 1st, 2015. Accredited organizations are required to complete full reaccreditation on a five-year basis. With this achievement, Cystic Fibrosis Canada remains a distinguished member of the ever-growing community of 250+ nonprofit organizations dedicated to operational excellence.   

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PMPRB court case outcome great news for cystic fibrosis
March 4, 2022

TORONTO 4 March, 2022 - The Quebec Court of Appeal has issued a much-anticipated decision in the court case brought forward by a number of pharmaceutical companies, led by Merck Canada, Inc, and on which Cystic Fibrosis Canada intervened. In a unanimous decision the three judges struck down two key proposed changes to the Patented Medicine Prices Review Board (PMPRB) guidelines, opening the way to improved access to medicines for patients living with cystic fibrosis.

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CYSTIC FIBROSIS CANADA RELEASES CANADIAN CF REGISTRY 2020 ANNUAL DATA REPORT
February 25, 2022

New CF Trends Report finds a disease in transition 

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OPEN LETTER TO CANADA’S PRIVATE INSURERS ON ACCESS TO TRIKAFTA
December 8, 2021
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Canadians Encouraged to Give the Gift of Time to Families Impacted by Cystic Fibrosis
November 30, 2021

Cystic Fibrosis Canada launches sixth annual holiday campaign to lengthen and improve lives

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Nunavut Confirms Trikafta Funding, All Provinces and Territories Will Now Cover Life-Changing CF Drug
November 23, 2021

Funding approval not leading to access across country that is deserved and needed 

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