News

TORONTO (October 2, 2019) – Cystic Fibrosis Canada is asking Canadians and candidates to do whatever it takes to improve access to potentially life-changing medicines for rare diseases. Through an online petition during the 2019 federal election season, Cystic Fibrosis Canada is calling on candidates to prioritize the creation of a rare disease strategy to improve access to drugs for rare diseases.

TORONTO (June 27, 2019) – Today, Siemens celebrates the milestone of $2 million in accumulative giving over the course of its more than 20 year partnership with Cystic Fibrosis Canada. Every June, the company runs a fundraising campaign to support cystic fibrosis (CF) research, advocacy and care. 

TORONTO (May 1, 2019) – Cystic Fibrosis Canada is celebrating the 15^th anniversary of its signature fundraising event, The Walk to Make Cystic Fibrosis History. Each year, the Walk is held on the last Sunday in May, Cystic Fibrosis Awareness Month. This year’s Walk will take place on Sunday, May 26 in over 70 communities across Canada.

Cystic Fibrosis Canada is excited to announce that temporary tattoo company inkbox has released a collection inspired by cystic fibrosis (CF) and the upcoming film Five Feet Apart. 50 percent of sales will be donated to the Cystic Fibrosis Individualized Therapy program (CFIT), a research partnership with SickKids.

TORONTO (February 27, 2019) – The governments of Saskatchewan, Alberta and Ontario have announced prescribing criteria for pediatric patients to qualify for public coverage of ORKAMBI on an exceptional, case-by-case basis. This announcement is the result of diligent advocacy work by Cystic Fibrosis Canada and the Canadian cystic fibrosis community. The decision comes three years after Health Canada approved the medication for use in Canada. 

TORONTO (November 27, 2018) ― With the launch of its holiday giving campaign, Tough Questions, Cystic Fibrosis Canada (CF Canada) is asking Canadians to help answer the questions that people with cystic fibrosis (CF) can’t. The fundraising campaign will feature five Canadian families and individuals affected by the fatal disease and demonstrate how a simple question can hurt to hear when the future is unknown. But Canadians can help because the answer to each question is in a cure.

TORONTO (October 17, 2018) –  Cannabis (also referred to as marijuana) has been available by prescription for a number of years in Canada, but with broader legalization, more interest has been raised on the subject.

TORONTO (October 4 , 2018) – Today, the Canadian Agency for Drugs and Technologies in Health (CADTH) has recommended that the cost of cystic fibrosis (CF) drug ORKAMBI not be covered by provincial drug programs. Cystic Fibrosis Canada wholeheartedly disagrees with the decision and cautions that this could have deadly consequences for some Canadians with CF for years to come.

TORONTO (June 19, 2018) – Cystic Fibrosis Canada national partner, CARSTAR, will fund travel and accommodations for participants of the Cystic Fibrosis Individualized Therapy (CFIT) study. With CARSTAR’s generous support, participants with cystic fibrosis (CF) from across Canada will travel to The Hospital for Sick Children in Toronto (SickKids) to take part in the ground-breaking study.

TORONTO (June 12, 2018) – Cystic Fibrosis Canada is pleased to announce its national partnership with Canadian based jewelry company, NOGU. Mario and Luca Lavorato, founders of NOGU and both diagnosed with cystic fibrosis (CF) at birth, have pledged to donate 50 percent of gross sales from the company’s Kite Collection to Cystic Fibrosis Canada.