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Volunteer Advocate

News

All media inquiries can be directed to mediarelations@cysticfibrosis.ca or by calling 1-800-378-2233.


Cystic Fibrosis Canada Partners with Evolve Fitness
July 28, 2020

TORONTO (July 28, 2020) – Cystic Fibrosis Canada is pleased to announce its year-long virtual partnership with Nova Scotia-based fitness centre, Evolve Fitness. Members of the cystic fibrosis (CF) community who sign up for a $30(CAD) monthly membership for online fitness classes will see $10 (CAD) of their membership fees donated to Cystic Fibrosis Canada every month, for a year.

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pan-Canadian Pharmaceutical Alliance agrees to negotiate for access to life-changing cystic fibrosis treatments
June 12, 2020

TORONTO (June 12, 2020) – Today, Canadians with cystic fibrosis are one step closer to gaining access to a suite of life-changing treatments for cystic fibrosis as the pan-Canadian Pharmaceutical Alliance (pCPA) and the drugs’ manufacturer, Vertex Pharmaceuticals, have agreed to begin negotiations.

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Statement: Black Lives Matter
June 5, 2020

A message from the CEO

Racist violence targeted at members of the Black community reminds us that silence in the face of injustice is never an option. Cystic Fibrosis Canada stands with the Black community. We at Cystic Fibrosis Canada will not remain silent when it comes to racism. Black Lives Matter.

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16th Annual Walk to Make Cystic Fibrosis History Transformed into a Virtual Experience
June 2, 2020

TORONTO (June 2, 2020)The Walk to Make Cystic Fibrosis History: Virtual Challenge has raised more than $1.8 million to help fund critical cystic fibrosis (CF) research and care, as well as advocacy for improved access to life-changing CF medications that are desperately needed.

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Early Data Suggests Encouraging Health Outcomes for People with Cystic Fibrosis who Have Contracted COVID-19
April 30, 2020

TORONTO (April 30, 2020) Led by the Cystic Fibrosis Trust’s CF Registry, the collaborative study includes data for 40 people with CF who have tested positive for COVID-19 in 8 different countries.

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Letter to Provincial Health Ministers and drug program managers
April 29, 2020

Dear Provincial Health Ministers and Drug Program Managers,

Due to COVID-19, Cystic Fibrosis Canada recently called upon government and Vertex to provide people with cystic fibrosis access to precision medicines known as CFTR modulators for humanitarian reasons.

Since that time, we are pleased to learn that Vertex has made an offer to the pan-Canadian Pharmaceutical Alliance (pCPA).  I urge you to start negotiations on that offer now...

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RuPaul’s Secret Celebrity Drag Race Star Wins $30,000 for Cystic Fibrosis Canada
April 27, 2020

TORONTO (April 27, 2020)Riverdale actor Jordan Connor, the recent winner of RuPaul’s Secret Celebrity Drag Race, has chosen Cystic Fibrosis Canada as his charity of choice for a donation of $30,000 in prize money.

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Volunteer Week letter from Kelly Grover
April 20, 2020

This week has been designated as “National Volunteer Week”, when the tremendous contributions of Canada’s volunteers are recognized from coast-to-coast. 

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Open Letter to Grocers: Cystic Fibrosis Canada's Call For Safer Shopping
April 17, 2020

An open letter to Canadian grocers:

I am writing on behalf of 4,300 Canadians who live with cystic fibrosis, a fatal, progressive, genetic condition.  Due to risk of respiratory infections, the health of people with cystic fibrosis is extremely vulnerable during this time of COVID-19, and they need your help.

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COVID-19 & Cystic Fibrosis Canada: A Message from the Board of Directors
April 3, 2020

Dear Members and Friends of Cystic Fibrosis Canada,

The COVID-19 pandemic has had an abrupt and unprecedented impact on the entire world. We have all had to shift the way we go about our daily lives, as family members, colleagues, volunteers and staff.

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