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Volunteer Advocate

News

All media inquiries can be directed to mediarelations@cysticfibrosis.ca or by calling 1-800-378-2233.


Life Changing Treatment, Trikafta, is Advancing Through The Canadian Drug Approval Process
December 18, 2020

Innovative drug can treat up to 90% of Canadians Living with CF, with promise of transforming lives

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Letter to Provincial Health Ministers regarding access to COVID-19 vaccines
December 15, 2020

An open letter to provincial Health Ministers to urge that Canadians living with CF should be prioritised for the COVID-19 vaccination.

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Kin Canada Club makes record breaking donation to Cystic Fibrosis Canada
December 13, 2020

The Kinsmen Club of Winnipeg has raised and is donating an amazing $100,000 to Cystic Fibrosis Canada.

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Annual Data Report compiled by Canadian Cystic Fibrosis Registry finds progress is being made, but there is still further to go
December 8, 2020

Toronto (December 8, 2020) - Today Cystic Fibrosis Canada released the Canadian Cystic Fibrosis Registry’s 2019 Annual Data Report, which has been generated regularly since 1976, examining key trends as well as health outcomes for people living with cystic fibrosis across Canada. Insights from the 2019 report support that early diagnoses, as well as advancements in available treatments, continue to improve both quality of life and survival for the thousands of Canadians with cystic fibrosis (CF).

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“Enjoying the Moment” Takes on a Whole New Meaning for People with Cystic Fibrosis
December 1, 2020

TORONTO (December 1, 2020) – Cystic Fibrosis Canada is proud to announce the launch of its fifth annual Year End fundraising campaign, Moments. The campaign features three Canadian families/ individuals who are affected by cystic fibrosis (CF), their hopes for the future and moments that they hold dear. Running until December 31, 2020, the campaign will help to ensure that Cystic Fibrosis Canada’s critical work to lengthen the lifespan and improve the lives of people living with cystic fibrosis can continue. Donations will be matched up to $150,000 until December 31 thanks to two private donors.

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New standards of care made available today by Cystic Fibrosis Canada
November 30, 2020

TORONTO (November 30, 2020) - Today, Cystic Fibrosis Canada launched the first in a series of new standards of care and guidelines related to the treatment of cystic fibrosis including Antibiotic Dosing Guideline for Cystic Fibrosis and Canadian Consensus Statement on Aerosolized Antibiotic Use in Cystic Fibrosis. These guidelines were developed with a Canadian focus, building on the current depth of knowledge and expertise of Canadian clinicians while leveraging other international research. 

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Impact of COVID-19 on Cystic Fibrosis Patients Examined in Global Report
November 9, 2020

TORONTO (November 9, 2020) - A new study recently published in the Journal of Cystic Fibrosis suggests that although the outcomes of COVID-19 in individuals living with cystic fibrosis (CF) were not as severe as originally feared, there is still a range of possible clinical outcomes following a diagnosis, and an indication that the novel coronavirus is not a benign virus for people with cystic fibrosis.

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Life-changing treatment, Trikafta, is coming to Canada
November 9, 2020

TORONTO (November 9, 2020)– Today the cystic fibrosis story is significantly changing, with a long-awaited transformational therapy now in sight for Canadians living with the disease. Cystic Fibrosis Canada has received information that a  decision has been made by the manufacturer to bring new CF medicines to Canada.

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Cystic Fibrosis Canada Hosts Historic Emergency All Party Meeting on Access to Trikafta
October 23, 2020

Approximately 30 Members of Parliament and Senators from all parties today met with cystic fibrosis advocacy groups to discuss how to get Canadians access to the breakthrough cystic fibrosis (CF) drug Trikafta in an historic all party meeting that was hosted by Cystic Fibrosis Canada.

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Cystic Fibrosis Canada joins inter-charity coalition to “Protect Our Access”
October 21, 2020

TORONTO, October 21, 2020— Cystic Fibrosis Canada is working with health charities and patient groups to launch a campaign to ensure Canadians are not denied access to breakthrough drugs, like the cystic fibrosis (CF) drug Trikafta. The campaign aims to influence policy and increase public awareness of the proposed changes to the Patented Medicine Prices Review Board (PMPRB) guidelines and their impact on Canadians.

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