Reports & Other Resources
2021 Annual data report: the canadian cystic fibrosis registry
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This report was updated on June 1, 2023. Please ensure you are using the most recent version of the report.
To read previous Canadian CF Registry Annual Data Reports, click below:
2020 TRENDS REPORT: A DISEASE IN TRANSITION
Cystic Fibrosis Canada has launched a Trends Report that examines key trends in Canadian CF health data.
2020 was anything but typical. For those who monitor the state of cystic fibrosis (CF) in Canada, it will be remembered as a year filled with uncertainty, optimism, and change. Cystic Fibrosis Canada’s Canadian Cystic Fibrosis Registry 2020 Annual Data Report shed light on how the events of this unusual year as well as advancements in treatments and access to new drugs over the last decade have impacted people who live with cystic fibrosis. Here, we explored three trends that emerged from the data in 2020 and asked what they might mean for the Canadian CF community. It is important to note that we did not conduct scientific studies and aren’t able to draw any specific conclusions, however, we can ask some intriguing questions given the observed data.
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