Join us on Thursday, August 19th, 2021 at the beautiful Elbow Springs Golf Club for the inaugural Western Roses CF Golf Tournament, in support of Cystic Fibrosis Canada.
Only good times will be had!Read More
Did you know that your version of Internet Explorer is out of date?
To get the best possible experience using our website we recommend downloading one of the browsers below.
Canadian CF Registry data can be made available for research and clinical study purposes following a formal request to Cystic Fibrosis Canada and pending the review and approval from the Registry Review Panel. There may be a fee associated with the administration, extraction and analysis of the data depending on the nature of the request.
The application form for accessing Canadian CF Registry data must be completed and forwarded to email@example.com. The request is forwarded to the Registry Review Panel comprised of Canadian CF clinicians and researchers. Additional documentation (e.g. REB approval, funding support, etc.) may be required and made available to the Registry Review Panel. If the request is approved, mandatory confidentiality agreement forms need to be signed before the release of information. After all these provisions have been met, the data will be securely transferred to the applicant.
For any concerns or questions, please contact us at firstname.lastname@example.org.