Info and Support
INFORMATION REQUESTS AND REFERRALS SERVICE
Cystic Fibrosis Canada has an information requests and referrals service in place to help you find the resources you are looking for. We help connect individuals to community and government resources. In addition to the resources provided below, you may contact us directly with queries pertaining to CF resources and disability supports.
We look forward to helping you find the information, referral, service, program and support you are seeking. Contact us by email at firstname.lastname@example.org or by phone at 1-800-378-2233 ext. 403 to speak with Eunice, Associate, Community Relations and Resources.
CYSTIC FIBROSIS RESOURCE GUIDE
Please note, some of the resources included in the Guide are only available in French and will direct you to a French external source. If you need assistance, please use our Information Request and Referral Service.
PLEASE CLICK THE IMAGE BELOW TO VIEW THE FULL GUIDE.
PATIENT AND CAREGIVER RESOURCES
The section includes CF health related resources that can help you better understand and manage CF care. If you have specific questions or health concerns for a particular case, please contact the CF clinic for medical advice.
The Canadian Guide to Nutrition and CFDownload
Pre-Pregnancy Nutrition Guidelines for Women with CFDownload
Enzyme Guidelines for Children with CFDownload
Enzyme Guidelines for Adults with CFDownload
Preventing Dehydration in Babies with CFDownload
Preventing Dehydration in Adults with CFDownload
Distal Intestinal Obstruction Syndrome (DIOS) in ChildrenDownload
Distal Intestinal Obstruction Syndrome (DIOS) in AdultsDownload
This section includes tools that outline key considerations and information about CF and school. You will also find supports for people with CF and their families/caregivers that are interested in pursuing a higher education included.
This section will include information on employment assistance and financial supports such as employment insurance benefits and the disability tax credit. While we work to have said resources available, please feel free to contact us with any queries by email at email@example.com or by phone at 1-800-378-2233 ext. 403.
This section includes resources and supports that are relevant to travel, whether it is for vacation or immigration to Canada.
Education and CF: Information for Teachers and ProfessorsDownload
School Toolkit: A Guide for Teachers and ParentsDownload
This section consists of resources that are relevant to people with CF that are transitioning from paediatric to adult clinic care. The CF health section above also includes resources to help you better understand and manage CF care. If you have specific questions or health concerns for a particular case, please contact your CF clinic for medical advice.
Transition (pediatric to adult care)
Teen Sexuality and Cystic FibrosisDownload
Sexuality, Fertility and Cystic Fibrosis for AdultsDownload
This resource is designed to help support you as a parent living with cystic fibrosis. The guide was developed by Cystic Fibrosis Canada’s Adult Cystic Fibrosis Advisory Committee (ACFAC) with the goal of providing more resources and support for adults with cystic fibrosis. The Parenting When You Have Cystic Fibrosis and the complementary activity book designed for children whose parents live with CF, Keepin’ it Rosy, are available for download and print.
Parenting with CF
Parenting When You Have Cystic FibrosisDownload
Keepin’ It Rosy – When Your Parent has Cystic Fibrosis: An Activity BookDownload
How to keep a food intake recordDownload
Cystic Fibrosis and Summer Care TipsDownload