Info and Support

helpline

Cystic Fibrosis Canada has a Helpline to answer your questions, information requests, referrals and to help connect you to the community and goernment resources available to you.

We look forward to helping you find the information, referral, service, program and support you are seeking. Contact us by email at helpline@cysticfibrosis.ca or by phone at 1-800-378-2233 to speak with a member of our staff.

Please note that Cystic Fibrosis Canada's Helpline is not staffed by a medical professional. For information related to a cystic fibrosis diagnosis or medical advice please contact your local CF clinic. In cases of emergency or crisis, please visit your local Emergency department or call 911.

CYSTIC FIBROSIS RESOURCE GUIDE 

Please note, some of the resources included in the Guide are only available in French and will direct you to a French external source. If you need assistance, please use our Information Request and Referral Service.

PLEASE CLICK THE IMAGE BELOW TO VIEW THE FULL GUIDE.

  

PATIENT AND CAREGIVER RESOURCES

The section includes CF health related resources that can help you better understand and manage CF care. If you have specific questions or health concerns for a particular case, please contact the CF clinic for medical advice. 

This section includes tools that outline key considerations and information about CF and school. You will also find supports for people with CF and their families/caregivers that are interested in pursuing a higher education included.

This section will include information on employment assistance and financial supports such as employment insurance benefits and the disability tax credit. While we work to have said resources available, please feel free to contact us with any queries by email at helpline@cysticfibrosis.ca or by phone at 1-800-378-2233 ext. 403.

This section includes resources and supports that are relevant to travel, whether it is for vacation or immigration to Canada. 

This section consists of resources that are relevant to people with CF that are transitioning from paediatric to adult clinic care. The CF health section above also includes resources to help you better understand and manage CF care. If you have specific questions or health concerns for a particular case, please contact your CF clinic for medical advice.

This resource is designed to help support you as a parent living with cystic fibrosis. The guide was developed by Cystic Fibrosis Canada’s Adult Cystic Fibrosis Advisory Committee (ACFAC) with the goal of providing more resources and support for adults with cystic fibrosis. The Parenting When You Have Cystic Fibrosis and the complementary activity book designed for children whose parents live with CF, Keepin’ it Rosy, are available for download and print.

---