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Resources

INFORMATION REQUESTS AND REFERRALS SERVICE

Cystic Fibrosis Canada has an information requests and referrals service in place to help you find the resources you are looking for. We help connect individuals to community and government resources. In addition to the resources provided below, you may contact us directly with queries pertaining to CF resources and disability supports.

We look forward to helping you find the information, referral, service, program and support you are seeking. Contact us by email at advocacy@cysticfibrosis.ca or by phone at 1-800-378-2233 ext. 403 to speak with Eunice, Coordinator, Community Relations and Resources.

CYSTIC FIBROSIS RESOURCE GUIDE

Please note, some of the resources included in the Guide are only available in French and will direct you to a French external source. If you need assistance, please use our Information Request and Referral Service.

PLEASE CLICK THE IMAGE BELOW TO VIEW THE FULL GUIDE.

PATIENT AND CAREGIVER RESOURCES

CF Health

The Canadian Guide to Nutrition and CF

Pre-Pregnancy Nutrition Guidelines for Women with CF

Healthy Nutrition for CF

Healthy Diet, Healthy Fats

Vitamins and CF

G-Tube Feeding

Enzyme Guidelines for Children with CF

Enzyme Guidelines for Adults with CF

Preventing Dehydration in Babies with CF

Preventing Dehydration in Adults with CF

Your Bone Health

Exercise Guidelines for CF

What you should know about CFRD

Impaired Glucose Tolerance

Distal Intestinal Obstruction Syndrome (DIOS) in Children

Distal Intestinal Obstruction Syndrome (DIOS) in Adults

Lung Transplantation and CF

Mental Health

The section includes CF health related resources that can help you better understand and manage CF care. If you have specific questions or health concerns for a particular case, please contact the CF clinic for medical advice.

Education

Education and CF: Information for Teachers and Professors

School Toolkit: A Guide for Teachers and Parents

This section includes tools that outline key considerations and information about CF and school. You will also find supports for people with CF and their families/caregivers that are interested in pursuing a higher education included.

Employment and Finances

This section will include information on employment assistance and financial supports such as employment insurance benefits and the disability tax credit. While we work to have said resources available, please feel free to contact us with any queries by email at advocacy@cysticfibrosis.ca or by phone at 1-800-378-2233 ext. 403.

Global Affairs

Travel Tips for Cystic Fibrosis

This section includes resources and supports that are relevant to travel, whether it is for vacation or immigration to Canada.

Transition (pediatric to adult care)

Teen Sexuality and Cystic Fibrosis

Sexuality, Fertility and Cystic Fibrosis for Adults

This section consists of resources that are relevant to people with CF that are transitioning from paediatric to adult clinic care. The CF health section above also includes resources to help you better understand and manage CF care. If you have specific questions or health concerns for a particular case, please contact your CF clinic for medical advice.

Additional Resources

Cystic fibrosis in Canada

Your child and CF

How to keep a food intake record

Cystic Fibrosis and Summer Care Tips

Upcoming Events

April 19, 2020

Outrun CF

Join us for our 10th anniversary of Outrun CF in Ajax!

We're catching up to a cure!

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CF Champions

Sarah Dale

Age 11, Guelph, Ontario

Sarah was born on July 12, 2006. At 2 months of age Sarah saw her first emergency room and admission to hospital where she received 2 blood transfusions for her low hemoglobin and was placed on antibiotics for a UTI until she was 4 years old and started to show signs of growth. This is when her mom witnessed her first SMILE & LAUGH… These are just two of the things that she is now known for today here at Ottawa Crescent Public School at 11 years old in grade 6!

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Over 2,000 different mutations of the CF gene