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Over 60 years ago, Cystic Fibrosis Canada was founded by the parents of children living with cystic fibrosis, bringing hope to the many CF families in Canada. Since then, Cystic Fibrosis Canada has dramatically changed the cystic fibrosis story. We have advanced research and care that has more than doubled life expectancy and we have grown into a leading organization with a central role engaging people living with cystic fibrosis, parents and caregivers, volunteers, researchers and healthcare professionals, government and donors. We work together to change lives for the over 4,300 Canadian children and adults living with cystic fibrosis through treatments, research, information and support. Despite our remarkable progress together, we are not yet done. We will keep pushing, keep going further until all people with cystic fibrosis can and do experience everything life has to offer — and enjoy everything life has to offer.
We would like to thank our founding families, the Summerhayes and the Mouton’s for their leadership and drive for change. And the countless volunteers who have given their valuable time to contribute to the advancement of Cystic Fibrosis Canada and make change for all Canadians living with CF over the years. In honour of our 60th anniversary, we asked our community members to share their advice for future families impacted by cystic fibrosis. Their submissions demonstrated the hope, strength, determination, and resilience of the cystic fibrosis community.
Upcoming Events
May 25, 2024
REGINA Ride for the Breath of Life Bike Run
On Saturday, May 25th, 2024 the South Saskatchewan Chapter of Cystic Fibrosis Canada is proud to be hosting their 40th Annual Ride for the Breath of Life.
We are so grateful for all of our riders over the years coming together to raise much needed funds. Since our first run we have raised over$824,595for research, advocacy & clinical care for Cystic Fibrosis Canada, all because of YOUR support!
See details for more information on how to join us!
Gillian Maramieri has been involved with Cystic Fibrosis Canada for 10 years and is a working mother of two boys. Her youngest, Matthew, has cystic fibrosis and was the first to be diagnosed with CF in the family. He was diagnosed at birth after Gillian’s doctors noticed an echogenic bowel 18 weeks into her pregnancy. Her first words after the diagnosis were, "Ok, now what do we need to do?"