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Archive for November, 2016

An Update on ORKAMBI

On Monday, we shared with you an update on CADTH’s recommendation that Vertex’s drug ORKAMBI not be reimbursed. The response from the community has been…

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The meaning of illness

A few weeks ago, Ryerson University in Toronto hosted the annual Jehangir Saleh Lecture. This was the second annual lecture hosted by the Saleh family…

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The Juritour Raises Nearly $120,000 for Cystic Fibrosis

 On Sunday, September 18, about 125 cyclists and one marathon runner from the legal community (lawyers, judges, notaries, bailiffs, legal officers, court clerks and paralegals) took part in the…

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“Kin”gratulations to the 2016 Bill Skelly and Ian F. McClure awardees

Kin Canada is Cystic Fibrosis Canada’s longest standing partner whose continued commitment has made a difference in the lives of Canadians with cystic fibrosis (CF)….

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Tips to stay healthy this flu season

One of the things people with cystic fibrosis (CF) should be particularly careful about is influenza, better known as the flu. As flu season approaches,…

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Registry Facts: Part 2

Having launched our 2014 Canadian CF Registry Annual Report this past summer, we’re going to continue sharing some of the data highlights with you this…

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5 CF-Friendly Fall Recipes

Fall is here, otherwise known as comfort food season. Many fall recipes are made for people with cystic fibrosis (CF), since it’s all about hearty,…

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Studying Bacteria in CF Lungs

We recently talked to PhD-funded student Fiona Whelan from McMaster University, who is currently studying the lung microbiome – that is, microorganisms in the lungs…

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What are you thankful for?

There’s no question that life with cystic fibrosis (CF) isn’t easy, but one thing we know to be true about our community is they are…

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