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Volunteer Advocate

Access to Medicines

Access to medicines is one of Cystic Fibrosis Canada’s key advocacy priorities. Timely access to CF medications improves health outcomes and helps people with cystic fibrosis live longer, healthier lives. This benefits not only the individual patient and their family, but Canada’s public health system as well.

All people in Canada with cystic fibrosis deserve equitable access to life enhancing medicines and therapies no matter which province or territory they live in. Unfortunately, this is not always the case. There is disparity between provincial and territorial formulary listings; many medications listed for coverage under provincial and territorial plans have conditional criteria that delay or deny access for some, while other plans do not list standard CF medications for reimbursement.

Our advocacy initiatives have successfully contributed to coverage of: Kalydeco© for people in every province and territory, Cayston©, TOBI and TOBI PODHALER in British Columbia, and improved access to Cayston© in Ontario.

Visit our Raising Our Voice page to see how we are advocating for equitable access to medicines across Canada, and to learn how you can join the fight.

Choose a province to see which medicines are available in your region
Disease Modifying Drug
Kalydeco G511D
Orkambi
Symptoms Management
PULMOZYME (Dornase Alfa)
Hypertonic Saline
Ibuprofen
CREON
COTAZYM
FLOVENT
Symbicort
Pulmicort
ADVAIR
Salbutamol (MDI or Nebules)
Infection Control
CAYSTON
Zithromax (Azithromycin)
COLY-MYCIN
TOBI Podhaler
TOBI Inhaled Tobramycin 300mg
Tobi Tobramycin/Injectable Tobramycin (used for inhalation)
Ciprofloxacin
Supplements
VITAMIN K
Vitamin D
MVW CF vitamins
Not Covered
CF Drug Program
Special Authorization/Exceptional Access Program
Open Benefit Plans/Regular Plans
Disease Modifying Drug

Kalydeco G511D

(ivacaftor) a pill for people ages 6 and older who have the G551D mutation of CF which helps the defective CFTR protein work at the surface of the cell

Symptoms Management

PULMOZYME (Dornase Alfa)

(dornase alfa) is an inhaled medication used to help thin the mucus

Hypertonic Saline

(hypertonic saline) to draw more water into the airways and make it easier to cough out the mucus.

Ibuprofen

anti-inflammatory to slow the rate of lung function decline

CREON

pancreatic enzymes to help people with CF digest their food

COTAZYM

pancreatic enzymes to help people with CF digest their food

FLOVENT

inhaled steroid treatment Open benefit

ADVAIR

inhaled steroid treatment for asthma

Salbutamol (MDI or Nebules)

bronchodilator Open benefit

Infection Control

CAYSTON

(aztreonam) inhaled antibiotic for the treatment of CF

Zithromax (Azithromycin)

(azithromycin) is a commonly used antibiotic to treat pneumonia

COLY-MYCIN

antibiotic

TOBI Podhaler

(tobramycin) inhaled antibiotic with Podhaler device to help fight the germ Pseudomonas aeruginosa 

TOBI Inhaled Tobramycin 300mg

(tobramycin) inhaled antibiotic to help fight the germ Pseudomonas aeruginosa 

Tobi Tobramycin/Injectable Tobramycin (used for inhalation)

antibiotic

Supplements

This chart contains information from publically accessible online provincial formularies. Some medication may not be listed on the formulary but may still be eligible for reimbursement through the CF clinic, while others may have co-pay or deductible restrictions. Please contact your CF team for further information on CF medicines and reimbursement criteria. The following information on the chart is from 2016. The 2018 version is coming soon.