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Volunteer Advocate
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Archive for August, 2017

Beyond My Battle

Nell and Martel are two friends with chronic illness who were inspired to start an online support group, Beyond My Battle, for other people living…

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Finding my role in the CF Community

Hello, my name is Jim Best and I am a 34-year-old living with Cystic Fibrosis. I am sitting and writing this realizing how hard it…

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Advocating for better access to medications

Most Canadians don’t think about or need to know how a new medicine is discovered, developed, approved and funded. For Canadians with rare disorders, however,…

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Advocating for Cystic Fibrosis

Cystic fibrosis (CF) is the most common fatal genetic disease affecting Canadian children and young adults. Currently, there is no cure. Approximately, one in every…

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Advocating with your CF Team

We’ve been told by doctors, parents, and people living with CF, that one of the largest hurdles in transitioning to adult care is self-advocacy. So…

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On Living with Chronic Illness

Living with cystic fibrosis is a life-long endeavor, and we know CFers have a lot of wisdom to share about living – and thriving –…

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Q&A with Cystic Fibrosis Canada Volunteer, Leah Senecal

What’s your involvement with CF Canada (are you a volunteer, donor, event organizer, etc.)? I have been volunteering with CF Canada for 2 years now…

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Uncovering New Ways to Tackle Pseudomonas aeruginosa

Pseudomonas aeruginosa is one of the most common lung pathogens in people living with CF. Few drugs exist to treat it and their effectiveness is…

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Q&A with Cystic Fibrosis Canada Volunteer, Chantal Préfontaine

What is the nature of your commitment to Cystic Fibrosis Canada (volunteer, donor, event organizer, etc.)? I have been a Cystic Fibrosis Canada volunteer for…

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