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Archive for July, 2018

Spolight: Cassidy’s Lemonade

Today, we are pleased to introduce Cassidy of the Evans family (Jesse, Kimberly, Cassidy & Lucia Evans). CF champion Cassidy explains how and why she…

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Chronic Illness and Media

Educating people about cystic fibrosis, a rare and invisible illness, is an essential but long process. Media can play an important role in depicting what…

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Spotlight: Mario and Luca Lavorato

Earlier this summer, we have announced our partnership with NOGU, founded by two incredibly creative members of our community, Mario and Luca Lavorato. Today we…

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Spotlight: Gianna Nero

Congratulations to The Nero family for being presented with the National Breath of Life® Award at the Walk to Make Cystic Fibrosis History in Sudbury…

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Cystic Fibrosis & Friendships

Having cystic fibrosis affects the day to day life and sometimes even relationships and friendships. As we know, friends can be our number one supporters,…

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Growing Older With CF

Canadians with cystic fibrosis born today have an estimated median survival age of over 50. Because of research and medical advancement, they live longer and…

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The Benefits of Sharing Our CF Stories

Sharing your story online can be sometimes frightening but the benefits of it can also be extremely positive. By sharing, you can use your own…

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Audrey’s Story

Dear Members of the Cystic Fibrosis Community, Let me introduce myself.  My name is Audrey Boissonneault.  I’m 18 years old and too much of a…

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Cystic Fibrosis & Invisible Illness

Sometimes disabilities and illnesses are invisible. For that reason, it can become a lot more difficult to explain to others what struggles or challenges you…

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