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Archive for December, 2017

Pearl’s Story

My name is Pearl Cooley, I am 21 years old and I have Cystic Fibrosis. As some of you may know, Cystic Fibrosis is a…

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Living a Full Life: Alex’s Story

I have been LIVING with Cystic Fibrosis for 46 years and counting. At first glance I may appear fine – but I am not. I…

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The Miller Family Story

I tossed and turned — and worried — all night. I kept checking on my 11-month-old son, Ryan, fast asleep in his crib. The day…

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Sweet Dreams

Sleep is one of the most important relationships we have with our body. Is your relationship with sleep impacted by CF? You’re not alone. Here…

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Living with CFRD

November 14 was World Diabetes Day. We know that cystic fibrosis related diabetes is top of mind from a young age. Here is how CFRD…

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Creating Space at Home

Everyone loves some nesting, but you aren’t as likely to find a lot of Pinterest suggestions for creating space in your home to help you…

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How to be a good employer to someone with CF

Finding a great employer or boss can be difficult for anyone. Add in the special circumstances around managing a career as well as a chronic…

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Guest Post: The story of Yannick Poirier (Part 2 of 2)

2016 was a year of drastic changes! It began with me living at my sister’s half of the time, surrounded by my brother-in-law and nieces, for…

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Guest Post: The story of Yannick Poirier (Part 1 of 2)

Hello Cysters and Cystas! My name’s Yannick Poirier. I’m 32 years old and the father of two cute little test tube monsters who will soon be six and…

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