Current Issues

Cystic Fibrosis Canada’s mission is to help people with cystic fibrosis by finding a cure or control for the disease, supporting high quality care and promoting public awareness. We accomplish this by funding innovative research and working to improve access to effective therapies and the multi-disciplinary CF clinic teams.

Through Cystic Fibrosis Canada’s efforts, people with cystic fibrosis are living longer than ever before, yet more needs to be done to help extend the lives of those with the disease.

Cystic Fibrosis Canada is currently advocating for:

• Implementation of newborn screening programs for all of Canada
• Equitable access to drugs and therapies
• Adequate and sustained funding for patient-centred CF clinics
• Advancing cystic fibrosis research and innovation
• Improvements to social and financial support for families affected by cystic fibrosis

Review some of our statements and news releases issued to the public and to policy makers

• Rapid Response Service review for TOBI^TM initiated by Newfoundland’s Pharmaceutical Services Division - December 11, 2012
• Access to HyperSal® and Nebusal® in British Columbia - December 5, 2012
• Access to Cayston in Ontario - September 21, 2012
• Cystic Fibrosis Canada Establishes First-Ever Access to Medicines Policy Advisory Panel - September 19, 2012
• Access to Cayston© in British Columbia - September 17, 2012
• Access to TOBI© and TOBI PODHALER© in British Columbia - September 13, 2012
• Cystic Fibrosis Canada Congratulates the Centre for Drug Research and Development (CDRD) on receiving $29 million in investment from the B.C. Government - June 19, 2012
• Cystic Fibrosis Canada Responds to Ontario 2012 Budget – March 28, 2012
• Cystic Fibrosis Canada Urges the Manitoba Government to Continue Newborn Screening for Cystic Fibrosis – March 26, 2012

Looking for a way to get involved? Cystic Fibrosis Canada is currently accepting applications for the role of Provincial CF Advocate.

This is a volunteer role that takes only a few hours each month, but can have a significant impact on the way CF issues are addressed in Canada by all levels of government. Provincial CF Advocates build relationships with elected and appointed officials in order to increase support for the programs, services and policies that can improve the quality of life for people with cystic fibrosis.

For more information on the role of Provincial CF Advocate, see the full position description here. To apply, contact advocacy@cysticfibrosis.ca.

Reviewed/updated: 2013-03-19