News

Cystic Fibrosis Canada calls on Quebec Health Minister to save lives by instead following the guidelines developed by CF clinicians, and fund Trikafta now for all Quebecers who can benefit...

Fundraising milestone a reflection of Kin Canada club members’ decades long commitment to the CF community.

 Cystic Fibrosis Canada has published new standardized care guidelines for modulator use in Canada.

If implemented, CADTH’s recommendation for the public funding of Trikafta would see access limited to only some of those who could benefit, requiring people to become sicker before offering treatment.

The Canadian Agency for Drugs and Technologies in Health (CADTH) provided this week short sighted and narrow guidance regarding game changing cystic fibrosis (CF) drug Trikafta, that, if adopted by the provinces, could effectively exclude over 25% of eligible Canadians with cystic fibrosis (CF), many of whom are youth, who could greatly benefit from the drug.

Cystic Fibrosis Canada is providing an exciting opportunity for the cystic fibrosis (CF) community to participate in a new study that will study the impact, both in time and money, that cystic fibrosis has on people living with the disease, their families and on society. Launched today, The Social and Economic Impact of Cystic Fibrosis in Canada: A Burden of Disease Study is open for registrations now until July 25, 2021.

The cystic fibrosis community is closer to its goal today as Health Canada announced the approval of Trikafta for sale in Canada, issuing a Notice of Compliance (NOC). Considered the single greatest innovation in the history of cystic fibrosis, Trikafta is a transformational drug that can change the lives of up to 90% of Canadians with cystic fibrosis. 

Cystic Fibrosis Canada is pleased to announce an important partnership with iMD Health Global (iMD), a CloudMD Software & Services company focused on health education, to provide credible resources regarding cystic fibrosis on the iMD platform.  This partnership provides increased access to thousands of healthcare providers and patients wanting to better understand the standards of cystic fibrosis (CF) care.

As many in this country face a painful wait for COVID-19 vaccines that could save their lives, they are experiencing the reality of what Canadians living with cystic fibrosis (CF) have endured for years. May is Cystic Fibrosis Awareness Month and Cystic Fibrosis Canada is working to urgently get access to transformative cystic fibrosis drugs that are available around the world, but not in Canada. Cystic Fibrosis Canada is calling on provincial governments to make life-saving CF drugs available to everyone who needs them now.

With the continued risk presented by the global COVID-19 pandemic, Cystic Fibrosis Canada has once again changed its signature fundraising event, the Walk to Make Cystic Fibrosis History, to a virtual format. This year, Cystic Fibrosis Canada is proud to present the 2021 virtual Walk to Make Cystic Fibrosis History’s Further campaign.