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Volunteer Advocate

Guidelines and Standards of Care

Cystic Fibrosis Canada is aiming to expand the reach of clinical knowledge beyond our specialized CF Clinics, so that every Canadian living with cystic fibrosis receives the care they need, when they need it. Particularly given cystic fibrosis is a rare disease, it is important that there is a deep and ever evolving understanding that is also shared beyond CF clinics, in hospitals and other stops in the medical journey. With that goal in mind, we have worked with leading experts across the country to develop standards of care that will provide relevant information in a Canadian context, and can be referenced as needed by any healthcare provider.

These guidelines and standards of care will provide a comprehensive source of knowledge on the main disciplines and components of cystic fibrosis care.

Canadians with cystic fibrosis and their loved ones are able to mention these resources to their clinician, if they are receiving care outside of a specialized CF clinic, as a reference point if and when needed. 

Currently available standards of care;

Additional standards are currently in development, and will be added to this page as they become available. 

The development and publication of these materials has been made possible by the contributions of Cystic Fibrosis Canada’s Healthcare Advisory Council and other leading CF experts, as well as the generosity of our donors. 

For more information, please contact: info@cysticfibrosis.ca