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Learn and Act

ON DEMAND WEBINAR: HOW TO TELL YOUR STORY

Everyone in the cystic fibrosis community has a story worth sharing. Watch this on demand webinar for tips and tricks on telling a compelling story when meeting with elected officials. Join others in positively influencing public policy by sharing your story today!

Speakers:

WEBINAR SERIES: ACCESS TO MODULATORS

Cystic Fibrosis Canada is hosting a webinar series focused on answering your questions regarding the access to CF modulators in Canada. Recordings will be available in the days following the webinars.

Trikafta : How to advocate for access

Learn more about the canadian political environment and how you can advocate for access to Trikafta. In this webinar, an expert from Hill & Knowlton in the drug-approval political environment explains Trikafta’s position in the system and the road ahead before the treatment is in the hands of those who need it. 

Special guest speakers: 

Hosted by Cystic Fibrosis Canada's President and CEO, Kelly Grover.

Understanding CF Modulators

This webinar will feature information on how CF modulators and Trikafta work and what these treatments mean for the CF community. Clinical trials will also be addressed and a clinician will present their viewpoint on access to modulators.

Hosted by : Eric Mariglia, Dr. John Wallenburg and Dr. Martha McKinney

Modulators in Canada’s health system

This webinar will present Canada’s health and drug access systems. Our experts will expose the steps Trikafta and other CF modulators need to go through to get in the hands of Canadians living with CF.

Stay tuned for more webinars!

COMMUNITY BRIEFING

Understanding that there is great anticipation around this Trikafta application and what lies ahead, we hosted a community briefing  to respond to questions, explain next steps in the drug approval process and outline our plans to continue to push to get Trikafta into the hands of Canadians as quickly as possible.

English briefing
Hosted by: Kelly Grover, John Wallenburg and Kim Steele