Everyone in the cystic fibrosis community has a story worth sharing. Watch this on demand webinar for tips and tricks on telling a compelling story when meeting with elected officials. Join others in positively influencing public policy by sharing your story today!
Kelly Grover, President and CEO of Cystic Fibrosis Canada
Kim Steele, Director of Government and Community Relations at Cystic Fibrosis Canada
Abby, CF advocate
Lilia, CF advocate
Kimberly and Cassidy, CF advocates
WEBINAR SERIES: ACCESS TO MODULATORS
Cystic Fibrosis Canada is hosting a webinar series focused on answering your questions regarding the access to CF modulators in Canada. Recordings will be available in the days following the webinars.
Trikafta : How to advocate for access
Learn more about the canadian political environment and how you can advocate for access to Trikafta. In this webinar, an expert from Hill & Knowlton in the drug-approval political environment explains Trikafta’s position in the system and the road ahead before the treatment is in the hands of those who need it.
Special guest speakers:
Michelle McLean, Senior Vice President, Hill & Knowlton Canada. An experienced lawyer, public affairs and communications professional in both the corporate and not-for-profit sectors, as National sector lead for Health + Wellness, Michelle provides strategic counsel and support to a wide array of communications and public affairs clients.
Patti Tweed, a member of Cystic Fibrosis Canada’s National Advocacy Network
Hosted by Cystic Fibrosis Canada's President and CEO, Kelly Grover.
Understanding CF Modulators
This webinar will feature information on how CF modulators and Trikafta work and what these treatments mean for the CF community. Clinical trials will also be addressed and a clinician will present their viewpoint on access to modulators.
Hosted by : Eric Mariglia, Dr. John Wallenburg and Dr. Martha McKinney
Modulators in Canada’s health system
This webinar will present Canada’s health and drug access systems. Our experts will expose the steps Trikafta and other CF modulators need to go through to get in the hands of Canadians living with CF.
Stay tuned for more webinars!
Understanding that there is great anticipation around this Trikafta application and what lies ahead, we hosted a community briefing to respond to questions, explain next steps in the drug approval process and outline our plans to continue to push to get Trikafta into the hands of Canadians as quickly as possible.
English briefing Hosted by: Kelly Grover, John Wallenburg and Kim Steele
June 17, 2021
Stand Up for a Cure
Join us for a fun night of laughs on Thursday, June 17th at 8:00 p.m., just in time for Father's Day! Put the children to bed and pull up a chair for some good laughs about adulting. This show is virtual but NOT pre-recorded - it's live. We promise there will be NO bad Dad jokes!
Holly and Corey Smith along with their team of family and friends have been longtime participants of the Kinsmen Club of Sackville Curling Funspiel and the Walk to Make Cystic Fibrosis History. Holly also sits on the Funspiel planning committee and took time to share her story with Kinsmen Andy Robinson.