My name is Kelly Ann Quinlan and I am 19 years old. I was diagnosed with cystic fibrosis at birth. My 24-year-old brother Michael also has cystic fibrosis, which is a challenge, as we both live in the same home but must live separately to a degree. We are very close to our parents and sometimes they struggle with the extra duties and constant cleaning that comes with raising two CF children.Read More
How CF Care Is Delivered
Cystic fibrosis (CF) clinics provide specialized multidisciplinary care for individuals with cystic fibrosis. In Canada, there are CF clinics in most major cities, all within a hospital setting, and many with a university affiliation.
CF patients are seen by various healthcare professionals at each clinic visit, and during hospitalization. This multidisciplinary approach optimizes the care delivered – regular interaction with healthcare professionals at clinic visits that include all team members offer convenient, comprehensive care and promote a long-term association with CF clinical care. Cystic fibrosis must be treated throughout life, and it is important that affected individuals develop a comfortable, trusting relationship with clinic personnel.
Ideally, individuals with cystic fibrosis attend clinic once every three or four months, and consult with all clinic team members at each clinic visit; these team members include the physician and nurse, along with the dietitian, physiotherapist, social worker, pharmacist, and others.
Cystic Fibrosis Canada provides support to accredited Canadian CF clinics through its Clinic Incentive grant program. These grants help ensure the CF clinic personnel are available to the patients, and have dedicated time to serve CF patients that attend their hospital. Cystic Fibrosis Canada’s grants also help to ensure clinic personnel have continual professional development, by attending meetings and conferences, so they continually upgrade their knowledge and skills, and remain up-to-date on advancements in research and care. These grants assist healthcare personnel with travel to outreach centres so they can provide CF-specific care in distant communities that do not have CF clinics.