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Archive for June, 2022

Mother on vacation with two boys

Travel Tips for Cystic Fibrosis

Travelling with a rare disease can add a level of complexity to your plans, we’ve compiled the information below to help ensure your travel is…

The 45th ECFS Conference Sign

Cystic Fibrosis Canada participates in the 45th ECFS Conference 

After a two-year hiatus due to the COVID-19 pandemic, health care professionals and cystic fibrosis (CF) researchers were excited to meet in Rotterdam, The Netherlands…

Dr Bradley Quon

Researcher Spotlight: Dr. Bradley Quon

Dr. Bradley Quon is an Associate Professor at the University of British Columbia and Adult CF program research director at St. Paul’s Hospital who has…

Jillian and Ava

Jillian and Ava’s Story

I have a 7-year-old daughter named Ava, who lives with cystic fibrosis (CF). She is hilarious, very sassy and constantly loves to put on a show…

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Advocacy Brief – Issue #11

Welcome to your June 3, 2022 edition of the Advocacy Brief Going further to ensure access to Trikafta for all eligible Canadians CADTH’s draft recommendation…

Audrey

Audrey’s Story

I’m a young woman of 22, excited by the world around me and the people I love.   My mother, Manon, and my father, Jacques,…

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The Advocacy Brief – Issue #10 

Welcome to your March 23, 2022, edition of The Advocacy Brief.    Trikafta Update  With Health Canada expected to approve Trikafta for 6-11 year olds in April…

Header image. Group of people at the Walk to Make Cystic Fibrosis History

#FurtherTogether at the 2022 Walk to Make Cystic Fibrosis History  

What a day! Rain or shine, the cystic fibrosis community came back together in a big way for the 2022 Walk to Make Cystic Fibrosis…