Archive for September, 2021
The Advocacy Brief Special Bulletin: CADTH shares its final recommendation to list Trikafta
Today, the Canadian Agency for Drugs and Technologies in Health (CADTH) shared its final recommendation regarding the funding of Trikafta. The agency, responsible for cost effectiveness reviews of new medicines, has confirmed its recommendation to list Trikafta and improved some…
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Meet the Team: Dr. Paul Eckford
Behind the scenes of Cystic Fibrosis Canada, is a strong and dedicated team of passionate individuals who are committed to supporting and improving the lives…
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How Cystic Fibrosis Canada Funded Researchers Are Tackling The Problem Of Bacterial Infections In Lungs Of People With CF
Over the past 60 years, much progress has been made by the cystic fibrosis (CF) research community to improve quality of life and care for…
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Advocate Spotlight: Maryse Haché
Province: New BrunswickConnection to CF: I am the mother of Jasmine Roussel, a 12-year-old girl with cystic fibrosis. She was diagnosed when she was a…
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The Advocacy Brief – Issue #6 – August 19 2021
Tick-tock! When will Trikafta be available publicly? The short answer is:… We would love to be able to name a date when all eligible Canadians…
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Meet Lisa Burechails: Chair of the Kin-CF Liaison Committee
Throughout Cystic Fibrosis Canada’s 57-year partnership with Kin Canada, Kin members from across the country have raised and donated nearly $50 million to support our…
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Advocate Spotlight: Danielle Weil
Name: Danielle WeilProvince: OntarioConnection to CF: Mother to 3 year old daughter with CFYears advocating: 3 years of advocating (and counting) Why did you get…
View Full PostThe Advocacy Brief – Issue #5 – July 23 2021
ICYMI: Trikafta is moving quickly through the Drug Review system In case you missed it, on June 18th, Health Canada made the life changing announcement…
View Full PostThe Advocacy brief – Issue #4 June 11th
We will not be silenced as we fight for access to life-saving drugs. Background: CF Voices under fire from federal agency meant to serve them…
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