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Archive for February, 2021

Leroy Smith

Matthew and Melissa Smith: Going Further for Leroy

My name is Melissa Smith, I’m a registered nurse and my husband, Matthew, is a photojournalist. We have two wonderful children – our son Leroy,…

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Advocacy‌ ‌updates‌ ‌and‌ ‌latest‌ ‌news‌ ‌-‌ ‌February 12

Trikafta review timeline updates Trikafta continues through the Canadian drug review & reimbursement process, currently under review with Health Canada, CADTH and INESSS. CADTH has…

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Advocacy UIpdates

Advocacy updates and latest news – January 29

Read the latest advocacy updates from Cystic Fibrosis Canada. Trikafta Review: Making CF Voices Heard Thanks to all of you who filled out our community…

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Patient Survey to Inform Trikafta Drug Review

As the life changing cystic fibrosis medicine, Trikafta, continues to rapidly move through Canada’s drug review and reimbursement system, Cystic Fibrosis Canada is conducting a…

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ADVOCACY UPDATE & LATEST NEWS FROM CYSTIC FIBROSIS CANADA: JANUARY 8

CFCANTWAIT: ADVOCACY UPDATES Rapid Review of Trikafta In Progress Trikafta has been formally accepted for review by Health Canada and their website has been updated…

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All staff thank you to Kin

Advocacy Update & Latest News from Cystic Fibrosis Canada: December 11

#CFCANTWAIT ADVOCACY NEWS Trikafta submission update A senior Health Canada official confirmed on a CF Canada webinar that as of December 4, 2020, Health Canada…

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For a lifetime of treasured moments

When living with a rare and fatal disease like cystic fibrosis (CF), simple moments of joy are extra special. As a result of generous donor…

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Advocacy Update & Latest News from Cystic Fibrosis Canada: November 21

Please see below for the latest news and advocacy updates from Cystic Fibrosis Canada this week: #CFCantWait: ADVOCACY UPDATES Trikafta to be Submitted to Health…

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Advocacy Update & Latest News from Cystic Fibrosis Canada: November 7

Please see below for the latest news and advocacy updates from Cystic Fibrosis Canada this week: #CFCantWait: ADVOCACY UPDATES House of Commons Standing Committee On…

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