Archive for June, 2022
Travel Tips for Cystic Fibrosis
Travelling with a rare disease can add a level of complexity to your plans, we’ve compiled the information below to help ensure your travel is…
Cystic Fibrosis Canada participates in the 45th ECFS Conference
After a two-year hiatus due to the COVID-19 pandemic, health care professionals and cystic fibrosis (CF) researchers were excited to meet in Rotterdam, The Netherlands…
Researcher Spotlight: Dr. Bradley Quon
Dr. Bradley Quon is an Associate Professor at the University of British Columbia and Adult CF program research director at St. Paul’s Hospital who has…
Jillian and Ava’s Story
I have a 7-year-old daughter named Ava, who lives with cystic fibrosis (CF). She is hilarious, very sassy and constantly loves to put on a show…
Advocacy Brief – Issue #11
Welcome to your June 3, 2022 edition of the Advocacy Brief Going further to ensure access to Trikafta for all eligible Canadians CADTH’s draft recommendation…
Audrey’s Story
I’m a young woman of 22, excited by the world around me and the people I love. My mother, Manon, and my father, Jacques,…
The Advocacy Brief – Issue #10
Welcome to your March 23, 2022, edition of The Advocacy Brief. Trikafta Update With Health Canada expected to approve Trikafta for 6-11 year olds in April…
#FurtherTogether at the 2022 Walk to Make Cystic Fibrosis History
What a day! Rain or shine, the cystic fibrosis community came back together in a big way for the 2022 Walk to Make Cystic Fibrosis…
It’s Cystic Fibrosis Awareness Month!
This week marks the start of a special time of year for us as May is Cystic Fibrosis Awareness Month. This is a time to…