Archive for June, 2021
The Advocacy brief – Issue #4 June 11th
We will not be silenced as we fight for access to life-saving drugs. Background: CF Voices under fire from federal agency meant to serve them…
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Getting Trikafta Saved my Life
Samantha Roy, lives with cystic fibrosis, was granted compassionate access to Trikafta after her health declined considerably as a young adult. She shares how this…
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David Van Beers: A Legacy of Hope
David Van Beers grew up in a family of six living on a farm in Ontario, the family had a busy household with four boys. David was the eldest, and he was born with cystic fibrosis (CF). Despite this diagnosis his childhood was similar to any other child; playing sports, enjoying games with friends – the only difference was the extra precautions and treatments he needed to do because of his CF.
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The Advocacy Brief – Issue #3 (May 18)
Welcome to your May 18th 2021 issue of The Advocacy Brief. Before we jump into the latest advocacy updates, including news of the review of…
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Four Ways You Can Help Get Access to Life-Saving CF Medicines Now
It’s CF Awareness Month! Help Canadians with cystic fibrosis access the miracle drug, Trikafta, ASAP!. From the #CFcantwait Provincial Meeting Challenge, to the Walk to…
View Full PostThe Advocacy Brief – Issue #2 (April 27)
Access to Modulators in Canada Updates The CF Can’t Wait Provincial Meeting Challenge is off to a great start Advocates across Canada have already held…
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Advocate Spotlight: Sandy Stevens
1. Name: Sandy Stevens 2. Province: Alberta 3. Connection to CF: Daughter with CF 4. Years advocating: 3+ years 5. Why did you get involved…
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The importance of organ donors, from a recipient’s perspective
Kadeem Morgan was diagnosed with cystic fibrosis shortly after his first birthday, news that was devastating for his close-knit family. Despite living with cystic fibrosis, he grew up enjoying his childhood, embracing his family’s love of food and music.
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Going Further for Cystic Fibrosis Research
Under the mentorship of Dr. Silvia T. Cardona, professor and Associate Head of Microbiology (Graduate Affairs) at the University of Manitoba, we are a small…
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