Archive for September, 2020
Canada, what are you waiting for?
When a recent Canadian study demonstrated the dramatic life-saving benefits of the cystic fibrosis drug, Trikafta, Cystic Fibrosis Canada intensified our calls to the government…
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Advocacy Update & Latest News from Cystic Fibrosis Canada: August 31
Please see below for the latest news and advocacy updates from Cystic Fibrosis Canada this week: #CFCantWait: ADVOCACY UPDATES 4,163 People Join Cystic Fibrosis Canada…
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Explained: the PMPRB’s impact on access to CF medicines and what you can do to help
The Patented Medicine Prices Review Board (PMPRB) and its proposed draft guidelines have become a major concern in the Canadian cystic fibrosis (CF) community. This…
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Advocacy Update & Latest News from Cystic Fibrosis Canada: July 10
Please see below for the latest news and advocacy updates from Cystic Fibrosis Canada this week: #CFCantWait: ADVOCACY UPDATES Cystic Fibrosis Canada’s Position on the…
Read MoreAdvocacy Update & Latest News from CF Canada: June 26
As more provinces are beginning to reopen as a part of the COVID-19 provincial reintegration plans, we hope that you are staying safe and well….
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Faces of a Clinical Trial – Jenna Coombs
Name: Jenna Coombs Province you live in: New Brunswick How many clinical trials have you participated in: 1 Describe yourself in one word:…
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pCPA Negotiations for CF Modulators: What Does this Mean for Access?
The pCPA has agreed to begin negotiations with Vertex Pharmaceuticals? What does that mean? This means the public drug plans – those provided by the…
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Advocacy Update & Latest News from CF Canada: May 29
It’s the last week of CF Awareness Month! We hope you are staying safe and well. Here’s a round-up of the latest advocacy updates and…
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Walking with a Purpose
My name is Karen Danelisky, and I live in Thunder Bay, Ontario. I don’t have cystic fibrosis (CF), but I do have many friends and…
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