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Archive for September, 2021

The Advocacy Brief Special Bulletin: CADTH shares its final recommendation to list Trikafta

Today, the Canadian Agency for Drugs and Technologies in Health (CADTH) shared its final recommendation regarding the funding of Trikafta. The agency, responsible for cost effectiveness reviews of new medicines, has confirmed its recommendation to list Trikafta and improved some…

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Meet the Team: Dr. Paul Eckford

Behind the scenes of Cystic Fibrosis Canada, is a strong and dedicated team of passionate individuals who are committed to supporting and improving the lives…

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How Cystic Fibrosis Canada Funded Researchers Are Tackling The Problem Of Bacterial Infections In Lungs Of People With CF

Over the past 60 years, much progress has been made by the cystic fibrosis (CF) research community to improve quality of life and care for…

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Advocate Spotlight: Maryse Haché

Province: New BrunswickConnection to CF: I am the mother of Jasmine Roussel, a 12-year-old girl with cystic fibrosis. She was diagnosed when she was a…

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The Advocacy Brief – Issue #6 – August 19 2021

Tick-tock! When will Trikafta be available publicly? The short answer is:… We would love to be able to name a date when all eligible Canadians…

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Meet Lisa Burechails: Chair of the Kin-CF Liaison Committee

Throughout Cystic Fibrosis Canada’s 57-year partnership with Kin Canada, Kin members from across the country have raised and donated nearly $50 million to support our…

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Advocate Spotlight: Danielle Weil

Name: Danielle WeilProvince: OntarioConnection to CF: Mother to 3 year old daughter with CFYears advocating: 3 years of advocating (and counting) Why did you get…

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The Advocacy Brief – Issue #5 – July 23 2021

ICYMI: Trikafta is moving quickly through the Drug Review system In case you missed it, on June 18th, Health Canada made the life changing announcement…

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The Advocacy brief – Issue #4 June 11th

We will not be silenced as we fight for access to life-saving drugs. Background: CF Voices under fire from federal agency meant to serve them…

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