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Archive for April, 2021

The importance of organ donors, from a recipient’s perspective

Kadeem Morgan was diagnosed with cystic fibrosis shortly after his first birthday, news that was devastating for his close-knit family. Despite living with cystic fibrosis, he grew up enjoying his childhood, embracing his family’s love of food and music.

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Cardona Lab

Going Further for Cystic Fibrosis Research

Under the mentorship of Dr. Silvia T. Cardona, professor and Associate Head of Microbiology (Graduate Affairs) at the University of Manitoba, we are a small…

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National Volunteer Week 2021: The Value of One, The Power of Many

From the beginning, volunteers have played a central role in the Cystic Fibrosis Canada story. Over 60 years ago, Cystic Fibrosis Canada was founded by the parents of children living with cystic fibrosis, bringing hope to the many families impacted by cystic fibrosis in Canada. Over time we have grown, and our mission has evolved to reflect the changing needs of our community, but the role of our dedicated volunteers has remained vital to the work we do.

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Shannon Price

Meet Shannon Price

My name is Shannon Price. I’m incredibly passionate about my wonderful family, my dogs Apple and Sammy, cooking, movies, music, reading, and being outdoors. While…

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access to medicines banner

The Advocacy Brief – Issue #1

Welcome to the first issue of Cystic Fibrosis Canada’s newsletter dedicated to advocacy. We’ll bring you the latest news on accessing modulators in Canada, updates…

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Elizabeth Dubé Walks for her godson, Émerick

Since I can remember, my family has always shared an incredibly tight bond. We spend a lot of time together, hosting family dinners and playing…

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Trikafta commitments

Advocacy‌‌ ‌‌updates‌‌ ‌‌and‌‌ ‌‌latest‌‌ ‌‌news‌‌ ‌‌-‌‌ ‌‌March 5

Trikafta’s Progress through the Canadian drug review and reimbursement system Submissions to review bodies CADTH and INESSS Cystic Fibrosis Canada has sent a submission on…

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Leroy Smith

Matthew and Melissa Smith: Going Further for Leroy

My name is Melissa Smith, I’m a registered nurse and my husband, Matthew, is a photojournalist. We have two wonderful children – our son Leroy,…

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Advocacy‌ ‌updates‌ ‌and‌ ‌latest‌ ‌news‌ ‌-‌ ‌February 12

Trikafta review timeline updates Trikafta continues through the Canadian drug review & reimbursement process, currently under review with Health Canada, CADTH and INESSS. CADTH has…

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