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Archive for April, 2019

BeADonor Month: Lung Transplant Resource

Candidates for double lung or heart-lung transplantation are referred to the transplant program by their CF clinic director or physician. This referral is based on…

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Seven key benefits of volunteering for CF Canada

To celebrate National Volunteer Week, Cystic Fibrosis Canada is sharing seven key benefits of volunteering for CF Canada. Cystic Fibrosis Canada depends on volunteers to…

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Organ Donation and cystic fibrosis

April is Organ Donation Awareness (or BeADonor) Month. Organ donation, specifically lung transplant, is a huge topic in our community and one that brings up…

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Comments round up: CF Canada answers your questions about a recent Orkambi update

Cystic Fibrosis Canada recently shared an update about changes to public access to Orkambi in various provinces. The governments of Saskatchewan, Alberta and Ontario announced…

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CONNECTIONS WINTER 2019

Cystic Fibrosis Canada is proud to publish the winter 2019 edition of Connections magazine! It is published online only. In this edition, we introduce our…

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A Forum on Rare Diseases in Quebec

On February 22, in Montreal, Cystic Fibrosis Canada, in collaboration with the Alliance des patients pour la santé and the Regroupement québécois des maladies orphelines (RQMO),…

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Is a clinical trial right for you?

Clinical trials test potential new drugs, treatments and devices to ensure they are safe, to assess how well they work, and to determine whether they…

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Fertility and Family Planning Webinar Series

Our Adult Cystic Fibrosis Advisory Committee (ACFAC) has been hard at work on a number of ongoing projects. Among these initiatives, we are pleased to…

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There’s Promise in the Pipeline, Now How Do We Pay For It?

On Thursday, January 24, 2019, Cystic Fibrosis Canada hosted a forum on access to precision medicines: “There’s Promise in the Pipeline, Now How Do We…

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