Stories Posts
Clinical trials: A CF parent’s perspective
My name is Lina Bhardwaj and my 13-year-old daughter Rianna lives with cystic fibrosis. Rianna was diagnosed at two months old and luckily, she’s been…
Read More
Clinical trials: A patient’s perspective
My name is Mark Becker and I’m 36-years-old. I’m a secondary school teacher for students with autism and I live with my wife Ana and…
Read More
Walk for Kadeem
My name is Kadeem Morgan, I’m 22 years old and live in Pickering, Ontario. I was diagnosed with cystic fibrosis at one year old. I…
Read More
Walk for Emme and Erin
My name is Danielle Weil, I live in Brantford, Ontario, and I am the mom to two beautiful girls – my twin daughters Mary-Elizabeth (who…
Read More
Walk for Audrey
My name is Audrey Boissonneault, I’m 18 years old, and I’m from St-Hyacynthe, Quebec. I was diagnosed with cystic fibrosis at two months old by…
Read More
Walk for the Grover family
My name is Tammy Grover, and I live in Regina, Saskatchewan with my three children Jaydn, Jelena and Jenesis. Our story might be familiar to…
Read More
Lessons Learned in Caregiving
According to the 2017 Canadian Cystic Fibrosis Registry Annual Data Report, over 4,300 Canadians attended CF clinics that year. But we know that our community…
Read More
Organ Donation and cystic fibrosis
April is Organ Donation Awareness (or BeADonor) Month. Organ donation, specifically lung transplant, is a huge topic in our community and one that brings up…
Read More
Living with an unpredictable disease
When you have CF, life can often be unpredictable. A simple cold can turn into an infection and an infection can lead to a long…
Read More