All Covid-19 updates and resources can be found here: COVID-19 INFORMATION FOR CF COMMUNITY
Skip To Content
Volunteer Advocate
cf insights cf insights

Uncategorized Posts

Using the Cystic Fibrosis Program for Individualized Therapy (CFIT) to enable therapy discovery for those people with rare CF-causing mutations

It has been an exciting year for Canadians impacted by cystic fibrosis (CF), particularly now with Trikafta being funded in all jurisdictions in Canada. However,…

View Full Post

Cystic Fibrosis Canada Launches Information and Support Survey

We want to hear from you!  Canadians living with or impacted by cystic fibrosis are encouraged to take Cystic Fibrosis Canada’s Information and Support survey – which aims to help us better serve the needs…

View Full Post

The importance of organ donors, from a recipient’s perspective

Kadeem Morgan was diagnosed with cystic fibrosis shortly after his first birthday, news that was devastating for his close-knit family. Despite living with cystic fibrosis, he grew up enjoying his childhood, embracing his family’s love of food and music.

View Full Post

#CFcantwait Advocacy Update

Latest news On Friday 14 February, Cystic Fibrosis Canada made a formal submission to the PMPRB calling on the federal government to halt the implementation…

View Full Post

Advocacy in Action: An Open Letter to the Right Honourable Justin Trudeau: Please Save my Life

Dear Prime Minister Trudeau: My name is Melissa Verleg and I am a 36 year old mother of two young boys from Vernon. I live…

View Full Post