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This golf season, we're asking you to donate your golf score to Cystic Fibrosis Canada to further much needed CF research, advocacy and continued patient care. There's 2 simple ways you can get involved! *See event listing for more details*
Understanding that there is great anticipation around this Trikafta application and what lies ahead, we will be hosting a community briefing this week to respond to questions, explain next steps in the drug approval process and outline our plans to continue to push to get Trikafta into the hands of Canadians as quickly as possible.
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Cystic Fibrosis Canada is hosting a webinar series focused on answering your questions regarding the access to CF modulators in Canada.
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This webinar will present Canada’s health and drug access systems. Our experts will expose the steps Trikafta and other CF modulators need to go through to get in the hands of Canadians living with CF.
Cards for a Cure
We are offering the cards for $5 each, or 3 for $10. E-mail cfcanadavic@gmail.com with your order, including design choices!
Capes & Crowns Virtually Enchanted
Raffles * 50/50
Purchase raffle tickets for your chance to win fabulous prizes or the 50/50 pot!
TICKETS ON SALE NOW!
https://cysticfibrosis.crowdchange.ca/1353
Draw date: Saturday, Jan 30 at 1-2pm
Don't wait - buy your tickets until 12:00 pm, Sat Jan 30
Ask the Experts Webinar: COVID-19 Vaccine
Do you have questions about the COVID-19 vaccine and cystic fibrosis? Are you concerned about its safety or efficacy? Wondering whether those who have had COVID-19 should receive the vaccine? Should those post or pre transplant receive it? Join our webinar on February 2, 2021 at 12pm ET at https://bit.ly/3qSqhRS.
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Join us on March 4th to learn more about the canadian political environment and how you can advocate for access to Trikafta. In this webinar, an expert from Hill & Knowlton in the drug-approval political environment will explain Trikafta’s position in the system and the road ahead before the treatment is in the hands of those who need it.
6:00 -7:00pm EST Thursday 4th March, 2021
To attend: https://us02web.zoom.us/j/87186551060.
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Cameron Davis was given the ultimate opportunity. He was selected out of hundreds of athletes to carry the flag for P.E.I at the 2019 Canada Winter Games opening ceremony that took place in Red Deer, Alberta.
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