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Volunteer Advocate

SEND A LETTER TO YOUR PROVINCIAL ELECTED MEMBER

ASK YOUR FRIENDS TO DO THE SAME. TELL THE GOVERNMENT THE TIME IS NOW.

Help make life-changing medications more accessible to people living with cystic fibrosis who need them. 

The drug system in Canada is broken and many Canadians with rare diseases like cystic fibrosis (CF) are unable to access the medications they need. As a result, life-changing medications are more accessible elsewhere while here in Canada the CF community is left behind.

Canada is one of the few developed countries without a rare disease strategy, which guides decisions about access to drugs for rare diseases. Cystic Fibrosis Canada is calling for the creation of a pan-Canadian rare disease strategy, a strategy that is developed and built in collaboration between the federal and provincial governments.

Today, by sending a letter using our template, you can help people living with CF by telling governments across Canada to:

She'll do whatever it takes for more moments like these.

Creating a rare disease strategy would mean that Canada would have a drug review process that fairly assesses drugs for rare diseases, including critical drugs for cystic fibrosis. People living with CF and their loved ones have waited long enough for equitable access to medicine. CF is a progressive and fatal genetic disease and people with CF do not have time to wait. Send your letter today to your local elected officials.

Our voices must be heard. Together, we can make a difference.