Join our advocacy initiative by raising your voice.
A new CF drug has the potential to significantly improve the lives of many people with CF. It is imperative the drug is covered by public and private drug plans.
Although Orkambi™ could eventually be indicated for up to 50% of the Canadian CF population, ensuring that Orkambi™ is covered by public and private drug plans is important not just for the people for whom Orkambi™ is indicated. It is important to all of the CF community because we know that in the coming years there are going to be many new drugs.
We must take action now so that decision-makers understand CF, appreciate the expertise of CF physicians who are prescribing these life-changing drugs, and commit to ensuring all people with CF have access to the best medicines available to them.
CF Advocates can have a significant impact on the way CF issues are addressed in Canada by all levels of government. Working with CF Canada, advocates build relationships with elected and appointed officials in order to increase support for programs, services and policies that can improve the quality of life for people with cystic fibrosis.
Ride for the Breath of Life Calgary & Southern Alberta
Join us on Saturday August 25th!
This is the 11th Annual Ride for the Breath of Life motorcycle ride and poker run in support of cystic fibrosis. The Ride starts at Mr. Mikes Steakhouse in Airdrie, AB and ends at Balzac. The route makes its way through small town Alberta promising a scenic trip with fun activities and refreshments along the way from – Airdrie to Linden, Didsbury, Water Valley and finally to Balzac.
Holly and Corey Smith along with their team of family and friends have been longtime participants of the Kinsmen Club of Sackville Curling Funspiel and the Walk to Make Cystic Fibrosis History. Holly also sits on the Funspiel planning committee and took time to share her story with Kinsmen Andy Robinson.