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Volunteer Advocate

Take Action Now

On Thursday 4 October 2018, the Canadian Agency for Drugs and Technologies in Health (CADTH) recommended that the cystic fibrosis (CF) drug ORKAMBI not be reimbursed by federal, provincial, and territorial drug programs. Quebec has a separate review body – The National Institute of Excellence in Health and Social Services (INESSS), and on Thursday, October 18, 2018, INESSS also announced it would not recommend ORKAMBI for public coverage, the recommendation was endorsed by Quebec Health Minister, Danielle McCann. As well, the British Columbia Pharmacare program is undertaking its own review, and other provinces may also choose to.

The CADTH recommendation is non-binding, and our governments do not have to abide by it. The Quebec Minister of Health must endorse the INESSS recommendation in order to finalize the recommendation. This is why we must take action now. Tell your health minister to grant access to Orkambi to improve the lives of those living with CF.

Tell your health minister to grant access to Orkambi now

Your provincial health minister can still do the right thing and grant access to Orkambi in your province. Find your minister’s contact details below and contact them today. Download our PDF of helpful talking points about Orkambi to help with your conversation or message. For more information on the CADTH decision and Orkambi, visit our Orkambi webpage.

Contact your Health Minister:

HONOURABLE SARAH HOFFMAN

Email:
health.minister@gov.ab.ca

Twitter:
@shoffmanAB

Address:
Minister of Health 
Office of the Minister
Health 
423 Legislature Building
10800 - 97 Avenue
Edmonton, AB
T5K 2B6

Phone:
780-427-3665 

HONOURABLE Adrian Dix

Email:
health.minister@gov.bc.ca

Twitter: 
@adriandix

Address:
Minister of Health
PO Box 9050 Stn Prov Govt
Victoria, BC V8W 9E2

Phone:
250-953-3547

 

HONOURABLE cAMERON FRIESEN

Email:
minhsal@leg.gov.mb.ca

 Twitter:
@Min_Friesen

Address:
Room 302 Legislative Building
450 Broadway
Winnipeg, MB R3C 0V8

Phone:
(204) 945-3731

Honourable Benoît Bourque

Email:
Benoit.Bourque@gnb.ca

Address:
520 King Street
Fredericton

Phone:
506-457-4800

Honourable Dr. John Haggie

Email:
hcsminister@gov.nl.ca

Address:
Department of Health and Community Services
P.O. Box 8700
1st Floor, West Block
Confederation Building
100 Prince Philip Drive
St. John's, NL A1B 4J6

Phone:
709-729–3124

HONOURABLE GLEN ABERNETHY

Email:
glen_abernethy@gov.nt.ca

Twitter:
@GlenAbernethy

Address:
P.O. Box 1320  
Yellowknife, NT
X1A 2L9

Phone:
867-767-9141 ext. 11135

Honourable Randy Delorey

Email:
Health.Minister@novascotia.ca

Twitter:
@RandyDelorey

Address:
Department of Health and Wellness
17th Floor, Barrington Tower
1894 Barrington Street
P.O. Box 488
Halifax, Nova Scotia
B3J 2R8

Phone:
902-424-3377 

Honourable george Hickes

Email:
ghickes@gov.nu.ca

Address:
Government of Nunavut
Legislative Office
P.O. Box 2410
Iqaluit, NU  X0A 0H0

Phone:
867-975-5075

HONOURABLE CHRISTINE ELLIOT

Email:
christine.elliott@pc.ola.org

Twitter:
@celliottability

Address:
Ministry of Health and Long-Term Care
80 Grosvenor Street, 10th Floor, Hepburn Block
Toronto, ON
M7A 1E9

 

HONOURABLE ROBERT MITCHELL

Email:
rjmitchell@gov.pe.ca

Address:
4th Floor, Shaw Building North
105 Rochford Street
P.O. Box 2000
Charlottetown, PE
C1A 7N8

Phone:
902-368-5250

MADAM danielle mccann

Email:
ministre@msss.gouv.qc.ca

Address:
Ministère de la Santé et des Services sociaux
Catherine-de-Longpré Building
1075 Ch. Sainte-Foy, 15th Floor
Québec, Québec
G1S 2M1

Phone:
418-266-7171

Honourable Jim Reiter

Email:
he.minister@gov.sk.ca

Twitter: 
@jim_reiter

Address:
Room 204,
Legislative Building,
2405 Legislative Drive,
Regina, SK, Canada,
S4S 0B3

Phone:
306-787-7345

Honourable Pauline Frost

Email:
pauline.frost@gov.yk.ca

Twitter:
@PFrostOldCrow

Address:
Yukon Legislative Assembly
Box 2703
Whitehorse, Yukon
Y1A 2C6

Phone:
867-633-7973

 

ABOUT ORKAMBI™

A new CF drug has the potential to significantly improve the lives of many people with CF. It is imperative the drug is covered by public and private drug plans.

Although Orkambi™ could potentially help 50% of the Canadian CF population, ensuring that Orkambi™ is covered by public and private drug plans is important not just for the people for whom Orkambi™ is for. It is important to all of the CF community because we know that in the coming years there are going to be many new drugs. Drug access today will impact drug access tomorrow.

We must take action now so that decision-makers understand CF, appreciate the expertise of CF physicians who are prescribing these life-changing drugs, and commit to ensuring all people with CF have access to the best medicines available to them.

BECOME AN ADVOCATE

CF Advocates can have a significant impact on the way CF issues are addressed in Canada by all levels of government. Working with CF Canada, advocates build relationships with elected and appointed officials in order to increase support for programs, services and policies that can improve the quality of life for people with cystic fibrosis.

For more information, contact advocacy@cysticfibrosis.ca.

ORKAMBI ADVOCATE’S TOOL KIT