This week marks the start of a special time of year for us as May is Cystic Fibrosis Awareness Month. This is a time to celebrate this tenacious community, remember our loved ones who we have lost and raise our collective voices to continue to push further for longer and healthier lives.
This year we have even more to fight for as the transformational drug, Trikafta, is now approved in Canada for eligible people with cystic fibrosis (CF) aged six and older, but red tape is preventing countless Canadians from accessing it.
Here is how we can go #furthertogether during Cystic Fibrosis Awareness Month for our friends impacted by cystic fibrosis:
WALK TO MAKE CYSTIC FIBROSIS HISTORY
Join the Walk to Make Cystic Fibrosis History, Canada’s largest national fundraising event to benefit people living with cystic fibrosis. Set yourself a fundraising goal that pushes you further than you’ve gone before. Every dollar you raise funds the work of Cystic Fibrosis Canada – including our advocacy efforts for access to Trikafta for everyone who can benefit from it.
Attend your local Walk event on Sunday, May 29th for an incredible CF community experience you will remember for a long time. Register today!
Please give generously today to support our Walk to Make Cystic Fibrosis History fundraising campaign as the community advocacy and government relations work of Cystic Fibrosis Canada is only made possible through the generosity of people like you. We are a donor-funded organization and your gift today, of any amount, helps fuel our life-changing work. Donate today!
HELP DRIVE ACCESS TO LIFE CHANGING DRUGS
Use our easy letter template and send a letter to your provincial elected official now! They have a part to play to ensure your province or territory makes Trikafta publicly available for all who can benefit from it. Tell them about the life-changing difference access to Trikafta will make for their constituents with cystic fibrosis. It just takes a few minutes. Send a letter now!
Use our tools, templates and support to meet with your provincial elected official and tell them why access to Trikafta in your province or territory, for all who can benefit, is critical. By taking part in the #FurtherTogether Meeting Challenge, you’ll help us reach our goal to meet with elected officials in as many ridings across Canada as possible to spread our important message. The value of this work cannot be overstated. Never met with your MPP before? We’re here to help! Find out more!
SHOP TO DONATE AND RAISE AWARENESS!
In honour of Cystic Fibrosis Awareness Month, and to help our community raise awareness, we are excited to announce that is now available. You will find shirts, sweaters, hats, hoodies and more – and the best part is, 15% of every purchase will be donated back to CF Canada, helping to raise important funds for research, advocacy, information and support and more. Please note that customizable Walk to Make Cystic Fibrosis History t-shirts must be ordered before May 10, 2022 to gaurantee delivery before Walk Day.
By pushing #FurtherTogether for access to Trikafta, you have the power to profoundly change the futures of so many.