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Special CF Canada Bulletin: Newfoundland and Labrador announce it will fund Trikafta

OCTOBER 20, 2021

Newfoundland and Labrador confirmed it will bring Trikafta to the province in November. This is a great day for everyone living with cystic fibrosis in Newfoundland and Labrador!

Every Atlantic province has now committed to fund Trikafta. Thank you to everyone who has fought so hard to bring this life-changing drug to Newfoundland and Labrador and everywhere in the Atlantic region.

When will access start and will there be criteria?

In a letter to Cystic Fibrosis Canada, the Newfoundland and Labrador government confirmed the province is expediating the process but has not signed an agreement with the manufacturer yet. We have asked if they could confirm the start date in November and details on access criteria.

Updates from other jurisdictions

Please keep an eye on the Access to Trikafta by Location page on our website. We continue to update with information about where each jurisdiction is up to in the process to provide access.

We are also adding frequently asked questions about navigating the access process in each jurisdiction to the page. So far, we have information on Ontario, Alberta and Saskatchewan available and will shortly be adding BC and Quebec. Other jurisdictions to follow shortly, as information is available.

No One Left Behind

Newfoundland and Labrador is the final Atlantic province to agree to fund Trikafta, and the final province to indicate an intention to fund the drug. Cystic Fibrosis Canada continues to apply pressure on the jurisdictions who have not yet provided an official confirmation that they fund Trikafta: Manitoba, Northwest Territories, Nunavut and the federal drug programs. We’re also urging New Brunswick and Nova Scotia to confirm the details of their promises to bring this life-changing drug to the province.

As more and more people gain access to this drug, Cystic Fibrosis Canada remains focused on making Trikafta accessible to ALL who can benefit, to ensure that no one is left behind. Please stay tuned for a special edition Advocacy Brief next month which will outline our advocacy priorities for the coming year and the steps will Cystic Fibrosis Canada will be taking to work towards ending CF for all. We are not going to stop, because no one is going to be left behind.

Join us Live tomorrow

We’ll be going live on Cystic Fibrosis Canada’s Atlantic Region Facebook page tomorrow, October 21, 2021 at 6:30pm NDT/ 6pm ADT / 5pm EDT.

We’ll take a moment to celebrate this great news for Newfoundland and Labrador and all of the Atlantic provinces.

We’ll answer your questions and discuss the next steps to get this drug into the hands of everyone who needs it.

The Live will be hosted by Christine Maclean, Associate, Fund Development – Atlantic Region with special guests Kim Steele, Director of Government and Community Relations and John Bennett, CF Canada lead provincial advocate for Newfoundland and Labrador.