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Volunteer Advocate

News

All media inquiries can be directed to mediarelations@cysticfibrosis.ca or by calling 1-800-378-2233.


Introducing Cystic Fibrosis Canada’s 2020-2021 Impact Report
April 30, 2021

Today, we are pleased to share our 2020-2021 Impact Report. In this report you will read about our advocacy work, research and healthcare initiatives and our response to the COVID-19 pandemic as well as stories from our amazing CF families and volunteers. 

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Letter to decision makers: Canadians with cystic fibrosis need the COVID-19 vaccine now
April 23, 2021

As the COVID-19 vaccination rollout plans continue to unfold, we ask that you ensure the people in your province diagnosed with cystic fibrosis (CF) and their caregivers are vaccinated now.

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CF Patients and Parents Push Provinces for Public Access to Life-Changing Medicines
April 12, 2021

Today, Cystic Fibrosis Canada is officially launching the #CFcantwait Provincial Meeting Challenge, through which we are calling on our community members to  meet with as many provincial elected officials as possible across Canada, from April to June 2021 as part of our fight for access to life-changing medications, including Trikafta, for the Canadian cystic fibrosis (CF) population.  

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An Open Letter to the Federal Health Minister
February 28, 2021

In a tremendous show of support for the cystic fibrosis community, an open letter to  federal Health Minister, Patty Hadju, has been signed by 44 Members of Parliament from all political parties. 

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Update on COVID-19 vaccine prioritization for Canadians living with cystic fibrosis
February 2, 2021

Update on COVID-19 vaccine prioritization for Canadians living with cystic fibrosis 

In December of 2020, Dr. John Wallenburg, Chief Scientific Officer at Cystic Fibrosis Canada sent a letter to provincial Health Ministers urging provinces to prioritize Canadians living with cystic fibrosis (CF) and their caregivers, as they determine priority groups for the COVID-19 vaccination.

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Life Changing Treatment, Trikafta, is Advancing Through The Canadian Drug Approval Process
December 18, 2020

Innovative drug can treat up to 90% of Canadians Living with CF, with promise of transforming lives

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Letter to Provincial Health Ministers regarding access to COVID-19 vaccines
December 15, 2020

An open letter to provincial Health Ministers to urge that Canadians living with CF should be prioritised for the COVID-19 vaccination.

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Kin Canada Club makes record breaking donation to Cystic Fibrosis Canada
December 13, 2020

The Kinsmen Club of Winnipeg has raised and is donating an amazing $100,000 to Cystic Fibrosis Canada.

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Annual Data Report compiled by Canadian Cystic Fibrosis Registry finds progress is being made, but there is still further to go
December 8, 2020

Toronto (December 8, 2020) - Today Cystic Fibrosis Canada released the Canadian Cystic Fibrosis Registry’s 2019 Annual Data Report, which has been generated regularly since 1976, examining key trends as well as health outcomes for people living with cystic fibrosis across Canada. Insights from the 2019 report support that early diagnoses, as well as advancements in available treatments, continue to improve both quality of life and survival for the thousands of Canadians with cystic fibrosis (CF).

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“Enjoying the Moment” Takes on a Whole New Meaning for People with Cystic Fibrosis
December 1, 2020

TORONTO (December 1, 2020) – Cystic Fibrosis Canada is proud to announce the launch of its fifth annual Year End fundraising campaign, Moments. The campaign features three Canadian families/ individuals who are affected by cystic fibrosis (CF), their hopes for the future and moments that they hold dear. Running until December 31, 2020, the campaign will help to ensure that Cystic Fibrosis Canada’s critical work to lengthen the lifespan and improve the lives of people living with cystic fibrosis can continue. Donations will be matched up to $150,000 until December 31 thanks to two private donors.

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