News

With the continued risk presented by the global COVID-19 pandemic, Cystic Fibrosis Canada has once again changed its signature fundraising event, the Walk to Make Cystic Fibrosis History, to a virtual format. This year, Cystic Fibrosis Canada is proud to present the 2021 virtual Walk to Make Cystic Fibrosis History’s Further campaign.

Today, we are pleased to share our 2020-2021 Impact Report. In this report you will read about our advocacy work, research and healthcare initiatives and our response to the COVID-19 pandemic as well as stories from our amazing CF families and volunteers. 

As the COVID-19 vaccination rollout plans continue to unfold, we ask that you ensure the people in your province diagnosed with cystic fibrosis (CF) and their caregivers are vaccinated now.

Today, Cystic Fibrosis Canada is officially launching the #CFcantwait Provincial Meeting Challenge, through which we are calling on our community members to  meet with as many provincial elected officials as possible across Canada, from April to June 2021 as part of our fight for access to life-changing medications, including Trikafta, for the Canadian cystic fibrosis (CF) population.  

In a tremendous show of support for the cystic fibrosis community, an open letter to  federal Health Minister, Patty Hadju, has been signed by 44 Members of Parliament from all political parties. 

Update on COVID-19 vaccine prioritization for Canadians living with cystic fibrosis 

In December of 2020, Dr. John Wallenburg, Chief Scientific Officer at Cystic Fibrosis Canada sent a letter to provincial Health Ministers urging provinces to prioritize Canadians living with cystic fibrosis (CF) and their caregivers, as they determine priority groups for the COVID-19 vaccination.

Innovative drug can treat up to 90% of Canadians Living with CF, with promise of transforming lives

An open letter to provincial Health Ministers to urge that Canadians living with CF should be prioritised for the COVID-19 vaccination.

The Kinsmen Club of Winnipeg has raised and is donating an amazing $100,000 to Cystic Fibrosis Canada.

Toronto (December 8, 2020) - Today Cystic Fibrosis Canada released the Canadian Cystic Fibrosis Registry’s 2019 Annual Data Report, which has been generated regularly since 1976, examining key trends as well as health outcomes for people living with cystic fibrosis across Canada. Insights from the 2019 report support that early diagnoses, as well as advancements in available treatments, continue to improve both quality of life and survival for the thousands of Canadians with cystic fibrosis (CF).