In a tremendous show of support for the cystic fibrosis community, an open letter to federal Health Minister, Patty Hadju, has been signed by 44 Members of Parliament from all political parties.
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All media inquiries can be directed to mediarelations@cysticfibrosis.ca or by calling 1-800-378-2233.
Update on COVID-19 vaccine prioritization for Canadians living with cystic fibrosis
In December of 2020, Dr. John Wallenburg, Chief Scientific Officer at Cystic Fibrosis Canada sent a letter to provincial Health Ministers urging provinces to prioritize Canadians living with cystic fibrosis (CF) and their caregivers, as they determine priority groups for the COVID-19 vaccination.
Read MoreInnovative drug can treat up to 90% of Canadians Living with CF, with promise of transforming lives
Read MoreAn open letter to provincial Health Ministers to urge that Canadians living with CF should be prioritised for the COVID-19 vaccination.
Read MoreThe Kinsmen Club of Winnipeg has raised and is donating an amazing $100,000 to Cystic Fibrosis Canada.
Read MoreToronto (December 8, 2020) - Today Cystic Fibrosis Canada released the Canadian Cystic Fibrosis Registry’s 2019 Annual Data Report, which has been generated regularly since 1976, examining key trends as well as health outcomes for people living with cystic fibrosis across Canada. Insights from the 2019 report support that early diagnoses, as well as advancements in available treatments, continue to improve both quality of life and survival for the thousands of Canadians with cystic fibrosis (CF).
Read MoreTORONTO (December 1, 2020) – Cystic Fibrosis Canada is proud to announce the launch of its fifth annual Year End fundraising campaign, Moments. The campaign features three Canadian families/ individuals who are affected by cystic fibrosis (CF), their hopes for the future and moments that they hold dear. Running until December 31, 2020, the campaign will help to ensure that Cystic Fibrosis Canada’s critical work to lengthen the lifespan and improve the lives of people living with cystic fibrosis can continue. Donations will be matched up to $150,000 until December 31 thanks to two private donors.
Read MoreTORONTO (November 30, 2020) - Today, Cystic Fibrosis Canada launched the first in a series of new standards of care and guidelines related to the treatment of cystic fibrosis including Antibiotic Dosing Guideline for Cystic Fibrosis and Canadian Consensus Statement on Aerosolized Antibiotic Use in Cystic Fibrosis. These guidelines were developed with a Canadian focus, building on the current depth of knowledge and expertise of Canadian clinicians while leveraging other international research.
Read MoreTORONTO (November 9, 2020) - A new study recently published in the Journal of Cystic Fibrosis suggests that although the outcomes of COVID-19 in individuals living with cystic fibrosis (CF) were not as severe as originally feared, there is still a range of possible clinical outcomes following a diagnosis, and an indication that the novel coronavirus is not a benign virus for people with cystic fibrosis.
Read MoreTORONTO (November 9, 2020)– Today the cystic fibrosis story is significantly changing, with a long-awaited transformational therapy now in sight for Canadians living with the disease. Cystic Fibrosis Canada has received information that a decision has been made by the manufacturer to bring new CF medicines to Canada.
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