News

In response to the COVID-19 pandemic, Cystic Fibrosis Canada continues to follow directives from the Public Health Agency of Canada, and all CF Canada offices have closed, with staff working from home until April 30th.

Cystic Fibrosis Canada is closely monitoring developments relating to COVID-19 in Canada. We understand this is a time of concern for many members of our community. CF Canada President & CEO Kelly Grover provides an update...

OTTAWA (March 11, 2020) – Cystic Fibrosis Canada leaders and patient advocates are meeting with government officials in Ottawa, and across the country, to call for changes to proposed regulatory reforms that are blocking access to a new breakthrough drug to treat cystic fibrosis.

While public health officials are actively monitoring the risk of the new coronavirus, COVID-19, Cystic Fibrosis Canada has consulted with members of the CF clinical community about its potential impact on people living with cystic fibrosis.

TORONTO (February 21, 2020) — Cystic Fibrosis Canada has called on the federal government to halt implementation of regulatory changes to the Patented Medicines Price Review Board (PMPRB). Read our submission to the PMPRB, titled Submission on Protecting Canadians from Excessive Drug Prices: Proposed Guidelines to the Patented Medicines Regulations.

TORONTO (November 28, 2019) - Cystic Fibrosis Canada is launching their fourth annual Year End campaign featuring four CF families and their wishes for the holiday season. The campaign helps raise vital funds for CF research, care and advocacy initiatives to help Canadians with CF live longer and healthier lives. The campaign will run from November 28^th to December 31^st, and all donations made on December 3^rd (Giving Tuesday) will be matched up to $30,000.

TORONTO (October 2, 2019) – Cystic Fibrosis Canada is asking Canadians and candidates to do whatever it takes to improve access to potentially life-changing medicines for rare diseases. Through an online petition during the 2019 federal election season, Cystic Fibrosis Canada is calling on candidates to prioritize the creation of a rare disease strategy to improve access to drugs for rare diseases.

TORONTO (June 27, 2019) – Today, Siemens celebrates the milestone of $2 million in accumulative giving over the course of its more than 20 year partnership with Cystic Fibrosis Canada. Every June, the company runs a fundraising campaign to support cystic fibrosis (CF) research, advocacy and care. 

TORONTO (May 1, 2019) – Cystic Fibrosis Canada is celebrating the 15^th anniversary of its signature fundraising event, The Walk to Make Cystic Fibrosis History. Each year, the Walk is held on the last Sunday in May, Cystic Fibrosis Awareness Month. This year’s Walk will take place on Sunday, May 26 in over 70 communities across Canada.

Cystic Fibrosis Canada is excited to announce that temporary tattoo company inkbox has released a collection inspired by cystic fibrosis (CF) and the upcoming film Five Feet Apart. 50 percent of sales will be donated to the Cystic Fibrosis Individualized Therapy program (CFIT), a research partnership with SickKids.