News

A message from the CEO

Racist violence targeted at members of the Black community reminds us that silence in the face of injustice is never an option. Cystic Fibrosis Canada stands with the Black community. We at Cystic Fibrosis Canada will not remain silent when it comes to racism. Black Lives Matter.

TORONTO (June 2, 2020) – The Walk to Make Cystic Fibrosis History: Virtual Challenge has raised more than $1.8 million to help fund critical cystic fibrosis (CF) research and care, as well as advocacy for improved access to life-changing CF medications that are desperately needed.

TORONTO (April 30, 2020) – Led by the Cystic Fibrosis Trust’s CF Registry, the collaborative study includes data for 40 people with CF who have tested positive for COVID-19 in 8 different countries.

Dear Provincial Health Ministers and Drug Program Managers,

Due to COVID-19, Cystic Fibrosis Canada recently called upon government and Vertex to provide people with cystic fibrosis access to precision medicines known as CFTR modulators for humanitarian reasons.

Since that time, we are pleased to learn that Vertex has made an offer to the pan-Canadian Pharmaceutical Alliance (pCPA).  I urge you to start negotiations on that offer now...

TORONTO (April 27, 2020) – Riverdale actor Jordan Connor, the recent winner of RuPaul’s Secret Celebrity Drag Race, has chosen Cystic Fibrosis Canada as his charity of choice for a donation of $30,000 in prize money.

This week has been designated as “National Volunteer Week”, when the tremendous contributions of Canada’s volunteers are recognized from coast-to-coast. 

An open letter to Canadian grocers:

I am writing on behalf of 4,300 Canadians who live with cystic fibrosis, a fatal, progressive, genetic condition.  Due to risk of respiratory infections, the health of people with cystic fibrosis is extremely vulnerable during this time of COVID-19, and they need your help.

Dear Members and Friends of Cystic Fibrosis Canada,

The COVID-19 pandemic has had an abrupt and unprecedented impact on the entire world. We have all had to shift the way we go about our daily lives, as family members, colleagues, volunteers and staff.

In response to the COVID-19 pandemic, Cystic Fibrosis Canada continues to follow directives from the Public Health Agency of Canada, and all CF Canada offices have closed, with staff working from home until April 30th.

Cystic Fibrosis Canada is closely monitoring developments relating to COVID-19 in Canada. We understand this is a time of concern for many members of our community. CF Canada President & CEO Kelly Grover provides an update...