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All media inquiries can be directed to mediarelations@cysticfibrosis.ca or by calling 1-800-378-2233.


Kin Canada reaches record-breaking $50 million in cumulative donations to Cystic Fibrosis Canada
August 21, 2021

Fundraising milestone a reflection of Kin Canada club members’ decades long commitment to the CF community.

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Cystic Fibrosis Canada calls on provinces to use newest Standards of Care Guidelines and enable urgent access to the life-changing drug, Trikafta
August 17, 2021

 Cystic Fibrosis Canada has published new standardized care guidelines for modulator use in Canada.

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CF Clinicians Speak Out Against Government Recommendations That Could Restrict Access to Miracle Drug Trikafta
August 12, 2021

If implemented, CADTH’s recommendation for the public funding of Trikafta would see access limited to only some of those who could benefit, requiring people to become sicker before offering treatment.

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CADTH FAILS TO FULLY RECOGNIZE GREATEST INNOVATION IN CYSTIC FIBROSIS HISTORY
July 9, 2021

The Canadian Agency for Drugs and Technologies in Health (CADTH) provided this week short sighted and narrow guidance regarding game changing cystic fibrosis (CF) drug Trikafta, that, if adopted by the provinces, could effectively exclude over 25% of eligible Canadians with cystic fibrosis (CF), many of whom are youth, who could greatly benefit from the drug.

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Cystic Fibrosis Canada launches comprehensive study to examine the social and economic impact of life with cystic fibrosis
July 6, 2021

Cystic Fibrosis Canada is providing an exciting opportunity for the cystic fibrosis (CF) community to participate in a new study that will study the impact, both in time and money, that cystic fibrosis has on people living with the disease, their families and on society. Launched today, The Social and Economic Impact of Cystic Fibrosis in Canada: A Burden of Disease Study is open for registrations now until July 25, 2021.

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Health Canada approval of transformational cystic fibrosis medication brings hope to CF community
June 18, 2021

The cystic fibrosis community is closer to its goal today as Health Canada announced the approval of Trikafta for sale in Canada, issuing a Notice of Compliance (NOC). Considered the single greatest innovation in the history of cystic fibrosis, Trikafta is a transformational drug that can change the lives of up to 90% of Canadians with cystic fibrosis. 

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Cystic Fibrosis Canada and iMD Health Global announce partnership to provide credible health resources into the hands of care providers and their patients across Canada.
June 2, 2021

Cystic Fibrosis Canada is pleased to announce an important partnership with iMD Health Global (iMD), a CloudMD Software & Services company focused on health education, to provide credible resources regarding cystic fibrosis on the iMD platform This partnership provides increased access to thousands of healthcare providers and patients wanting to better understand the standards of cystic fibrosis (CF) care.

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Cystic Fibrosis Canada calls on Provinces to end the wait and make vital CF drugs available now
May 11, 2021

As many in this country face a painful wait for COVID-19 vaccines that could save their lives, they are experiencing the reality of what Canadians living with cystic fibrosis (CF) have endured for years. May is Cystic Fibrosis Awareness Month and Cystic Fibrosis Canada is working to urgently get access to transformative cystic fibrosis drugs that are available around the world, but not in Canada. Cystic Fibrosis Canada is calling on provincial governments to make life-saving CF drugs available to everyone who needs them now.

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17th Annual Walk to Make Cystic Fibrosis History Goes Virtual, Again
May 1, 2021

With the continued risk presented by the global COVID-19 pandemic, Cystic Fibrosis Canada has once again changed its signature fundraising event, the Walk to Make Cystic Fibrosis History, to a virtual format. This year, Cystic Fibrosis Canada is proud to present the 2021 virtual Walk to Make Cystic Fibrosis History’s Further campaign.

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Introducing Cystic Fibrosis Canada’s 2020-2021 Impact Report
April 30, 2021

Today, we are pleased to share our 2020-2021 Impact Report. In this report you will read about our advocacy work, research and healthcare initiatives and our response to the COVID-19 pandemic as well as stories from our amazing CF families and volunteers. 

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