News

The Kinsmen Club of Winnipeg has raised and is donating an amazing $100,000 to Cystic Fibrosis Canada.

Toronto (December 8, 2020) - Today Cystic Fibrosis Canada released the Canadian Cystic Fibrosis Registry’s 2019 Annual Data Report, which has been generated regularly since 1976, examining key trends as well as health outcomes for people living with cystic fibrosis across Canada. Insights from the 2019 report support that early diagnoses, as well as advancements in available treatments, continue to improve both quality of life and survival for the thousands of Canadians with cystic fibrosis (CF).

TORONTO (December 1, 2020) – Cystic Fibrosis Canada is proud to announce the launch of its fifth annual Year End fundraising campaign, Moments. The campaign features three Canadian families/ individuals who are affected by cystic fibrosis (CF), their hopes for the future and moments that they hold dear. Running until December 31, 2020, the campaign will help to ensure that Cystic Fibrosis Canada’s critical work to lengthen the lifespan and improve the lives of people living with cystic fibrosis can continue. Donations will be matched up to $150,000 until December 31 thanks to two private donors.

TORONTO (November 30, 2020) - Today, Cystic Fibrosis Canada launched the first in a series of new standards of care and guidelines related to the treatment of cystic fibrosis including Antibiotic Dosing Guideline for Cystic Fibrosis and Canadian Consensus Statement on Aerosolized Antibiotic Use in Cystic Fibrosis. These guidelines were developed with a Canadian focus, building on the current depth of knowledge and expertise of Canadian clinicians while leveraging other international research. 

TORONTO (November 9, 2020) - A new study recently published in the Journal of Cystic Fibrosis suggests that although the outcomes of COVID-19 in individuals living with cystic fibrosis (CF) were not as severe as originally feared, there is still a range of possible clinical outcomes following a diagnosis, and an indication that the novel coronavirus is not a benign virus for people with cystic fibrosis.

TORONTO (November 9, 2020)– Today the cystic fibrosis story is significantly changing, with a long-awaited transformational therapy now in sight for Canadians living with the disease. Cystic Fibrosis Canada has received information that a  decision has been made by the manufacturer to bring new CF medicines to Canada.

An open letter from Canadian cystic fibrosis clinicians calling upon the government to take action for Trikafta now. 

TORONTO, September 4, 2020— Cystic Fibrosis Canada is proud to announce the expansion of the Cystic Fibrosis Canada Accelerating Clinical Trials Network (CF CanACT) from six sites across Canada, to ten.

TORONTO, August 24, 2020 - Cystic Fibrosis Canada is imploring the government to take action given new research published today that demonstrates that access to the cystic fibrosis (CF) drug Trikafta in 2021 would result in profound health improvements for people living with cystic fibrosis who take the drug. By 2030 Trikafta could reduce the number of people living with severe lung disease by 60% and reduce the number of deaths by 15%.

TORONTO (July 28, 2020) – Cystic Fibrosis Canada is pleased to announce its year-long virtual partnership with Nova Scotia-based fitness centre, Evolve Fitness. Members of the cystic fibrosis (CF) community who sign up for a $30(CAD) monthly membership for online fitness classes will see $10 (CAD) of their membership fees donated to Cystic Fibrosis Canada every month, for a year.