News

OTTAWA (March 11, 2020) – Cystic Fibrosis Canada leaders and patient advocates are meeting with government officials in Ottawa, and across the country, to call for changes to proposed regulatory reforms that are blocking access to a new breakthrough drug to treat cystic fibrosis.

While public health officials are actively monitoring the risk of the new coronavirus, COVID-19, Cystic Fibrosis Canada has consulted with members of the CF clinical community about its potential impact on people living with cystic fibrosis.

TORONTO (February 21, 2020) — Cystic Fibrosis Canada has called on the federal government to halt implementation of regulatory changes to the Patented Medicines Price Review Board (PMPRB). Read our submission to the PMPRB, titled Submission on Protecting Canadians from Excessive Drug Prices: Proposed Guidelines to the Patented Medicines Regulations.

TORONTO  (June 1, 2018) – Cystic Fibrosis Canada’s largest fundraising event, The Walk to Make Cystic Fibrosis History, will go to new heights in 2019 with a trek to Machu Picchu in Peru. The week long journey begins on May 25, 2019 and is organized through Charity Challenge, the world's leading tour operator, running overseas fundraising challenges.

May 2, 2018 (TORONTO) – Cystic Fibrosis Canada (CF Canada) is launching a national campaign this May, Cystic Fibrosis Awareness Month, to call on the government to make life-changing medications accessible for those who need it. Currently, a life-changing medication called Orkambi has the potential to benefit 2,100 of the 4,200 Canadians who live with cystic fibrosis (CF). Unfortunately, without public funding, many people with CF cannot access it despite its approval by Health Canada and doctors prescribing it.