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All media inquiries can be directed to mediarelations@cysticfibrosis.ca or by calling 1-800-378-2233.


OPEN LETTER to elected officials and policymakers in Canada’s drug review and reimbursement system from cystic fibrosis clinicians
September 17, 2020

An open letter from Canadian cystic fibrosis clinicians calling upon the government to take action for Trikafta now. 

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Clinical Trials Network Now Covers More Than 60% of Canadian CF Population
September 4, 2020

TORONTO, September 4, 2020Cystic Fibrosis Canada is proud to announce the expansion of the Cystic Fibrosis Canada Accelerating Clinical Trials Network (CF CanACT) from six sites across Canada, to ten.

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New Research Shows 15% Reduction in Cystic Fibrosis Deaths by 2030 If Trikafta is Made Available Now
August 24, 2020

TORONTO, August 24, 2020 - Cystic Fibrosis Canada is imploring the government to take action given new research published today that demonstrates that access to the cystic fibrosis (CF) drug Trikafta in 2021 would result in profound health improvements for people living with cystic fibrosis who take the drug. By 2030 Trikafta could reduce the number of people living with severe lung disease by 60% and reduce the number of deaths by 15%.

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Cystic Fibrosis Canada Partners with Evolve Fitness
July 28, 2020

TORONTO (July 28, 2020) – Cystic Fibrosis Canada is pleased to announce its year-long virtual partnership with Nova Scotia-based fitness centre, Evolve Fitness. Members of the cystic fibrosis (CF) community who sign up for a $30(CAD) monthly membership for online fitness classes will see $10 (CAD) of their membership fees donated to Cystic Fibrosis Canada every month, for a year.

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pan-Canadian Pharmaceutical Alliance agrees to negotiate for access to life-changing cystic fibrosis treatments
June 12, 2020

TORONTO (June 12, 2020) – Today, Canadians with cystic fibrosis are one step closer to gaining access to a suite of life-changing treatments for cystic fibrosis as the pan-Canadian Pharmaceutical Alliance (pCPA) and the drugs’ manufacturer, Vertex Pharmaceuticals, have agreed to begin negotiations.

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Statement: Black Lives Matter
June 5, 2020

A message from the CEO

Racist violence targeted at members of the Black community reminds us that silence in the face of injustice is never an option. Cystic Fibrosis Canada stands with the Black community. We at Cystic Fibrosis Canada will not remain silent when it comes to racism. Black Lives Matter.

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Early Data Suggests Encouraging Health Outcomes for People with Cystic Fibrosis who Have Contracted COVID-19
April 30, 2020

TORONTO (April 30, 2020) Led by the Cystic Fibrosis Trust’s CF Registry, the collaborative study includes data for 40 people with CF who have tested positive for COVID-19 in 8 different countries.

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RuPaul’s Secret Celebrity Drag Race Star Wins $30,000 for Cystic Fibrosis Canada
April 27, 2020

TORONTO (April 27, 2020)Riverdale actor Jordan Connor, the recent winner of RuPaul’s Secret Celebrity Drag Race, has chosen Cystic Fibrosis Canada as his charity of choice for a donation of $30,000 in prize money.

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Volunteer Week letter from Kelly Grover
April 20, 2020

This week has been designated as “National Volunteer Week”, when the tremendous contributions of Canada’s volunteers are recognized from coast-to-coast. 

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Open Letter to Grocers: Cystic Fibrosis Canada's Call For Safer Shopping
April 17, 2020

An open letter to Canadian grocers:

I am writing on behalf of 4,300 Canadians who live with cystic fibrosis, a fatal, progressive, genetic condition.  Due to risk of respiratory infections, the health of people with cystic fibrosis is extremely vulnerable during this time of COVID-19, and they need your help.

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