News

An open letter from Canadian cystic fibrosis clinicians calling upon the government to take action for Trikafta now. 

TORONTO, September 4, 2020— Cystic Fibrosis Canada is proud to announce the expansion of the Cystic Fibrosis Canada Accelerating Clinical Trials Network (CF CanACT) from six sites across Canada, to ten.

TORONTO, August 24, 2020 - Cystic Fibrosis Canada is imploring the government to take action given new research published today that demonstrates that access to the cystic fibrosis (CF) drug Trikafta in 2021 would result in profound health improvements for people living with cystic fibrosis who take the drug. By 2030 Trikafta could reduce the number of people living with severe lung disease by 60% and reduce the number of deaths by 15%.

TORONTO (July 28, 2020) – Cystic Fibrosis Canada is pleased to announce its year-long virtual partnership with Nova Scotia-based fitness centre, Evolve Fitness. Members of the cystic fibrosis (CF) community who sign up for a $30(CAD) monthly membership for online fitness classes will see $10 (CAD) of their membership fees donated to Cystic Fibrosis Canada every month, for a year.

TORONTO (June 12, 2020) – Today, Canadians with cystic fibrosis are one step closer to gaining access to a suite of life-changing treatments for cystic fibrosis as the pan-Canadian Pharmaceutical Alliance (pCPA) and the drugs’ manufacturer, Vertex Pharmaceuticals, have agreed to begin negotiations.

A message from the CEO

Racist violence targeted at members of the Black community reminds us that silence in the face of injustice is never an option. Cystic Fibrosis Canada stands with the Black community. We at Cystic Fibrosis Canada will not remain silent when it comes to racism. Black Lives Matter.

TORONTO (April 30, 2020) – Led by the Cystic Fibrosis Trust’s CF Registry, the collaborative study includes data for 40 people with CF who have tested positive for COVID-19 in 8 different countries.

TORONTO (April 27, 2020) – Riverdale actor Jordan Connor, the recent winner of RuPaul’s Secret Celebrity Drag Race, has chosen Cystic Fibrosis Canada as his charity of choice for a donation of $30,000 in prize money.

This week has been designated as “National Volunteer Week”, when the tremendous contributions of Canada’s volunteers are recognized from coast-to-coast. 

An open letter to Canadian grocers:

I am writing on behalf of 4,300 Canadians who live with cystic fibrosis, a fatal, progressive, genetic condition.  Due to risk of respiratory infections, the health of people with cystic fibrosis is extremely vulnerable during this time of COVID-19, and they need your help.