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Volunteer Advocate

News

All media inquiries can be directed to Jennifer Stranges, Associate, Corporate Communications at mediarelations@cysticfibrosis.ca or by calling 1-800-378-2233 ext. 290.


Triple transplant teen doing well at three months after rare surgery
December 3, 2015

A unique triple transplant has transformed the life of a 19-year-old Cystic Fibrosis patient who can now walk without an oxygen tank, exercise, eat full meals, and plan for the future.

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SickKids Foundation and Cystic Fibrosis Canada announce partnership to help advance global research and transform the future for CF patients
October 21, 2015

TORONTO, October 21, 2015 – SickKids Foundation is pleased to announce a newly formed partnership with Cystic Fibrosis Canada which sees the creation of the Program for Individualized Cystic Fibrosis (CF) Therapy. The partnership includes a multi-year commitment to raise $7.5 million in support of CF research conducted at the Peter Gilgan Centre for Research and Learning at SickKids. This generous support will help SickKids researchers accelerate the discovery of new treatments and determine the most effective, personalized therapies for CF patients.

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Congratulations to the Bill Skelly and Ian F. McClure Award Recipients
September 21, 2015

The 2014-2015 Bill Skelly and Ian F. McClure awards were presented to Kin Canada recipients on Saturday, August 22, 2015 at Kin Canada’s National Convention in Brandon, Manitoba. BILL SKELLY AWARD The Bill Skelly Awards, presented by Cystic…

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LCBO stores raise funds for Cystic Fibrosis Canada
September 11, 2015

Sunday, September 13, 2015 (Toronto, ON) — Ontarians can help support Cystic Fibrosis Canada by making a donation at any of the more than 650 LCBO stores throughout Ontario. Donation boxes for Cystic Fibrosis Canada will be displayed at LCBO…

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Madi Vanstone and Shannon Carkner on CHCH News
May 29, 2015

CF Champion Madi Vanstone talks about the challenges of living with cystic fibrosis and KALYDECO®, and Regional Fund Developer for Cystic Fibrosis Canada Shannon Carkner provides further information on the disease on CHCH News.

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Norma Beauchamp and Madi Vanstone on Global News
May 29, 2015

President and CEO Norma Beauchamp and CF Champion Madi Vanstone were featured this week on Global News. While Norma discusses CARSTAR’s Great Strides™ Walk for Cystic Fibrosis Canada and the #AWorldWithoutCF social media campaign, Madi talks…

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May 2015 – CF Insights
May 29, 2015
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Cystic Fibrosis Canada Hosts a Successful 15th Broken Arrow Conference
May 28, 2015

On May 1st – 3rd, 2015, Cystic Fibrosis Canada hosted the 15th Broken Arrow Conference in Toronto. Attendees included CF researchers and healthcare professionals who shared their expertise related to the meeting’s theme, ‘Gene Discovery to…

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Katie and Sophia Schulz on CHCH News
May 22, 2015

Katie Schulz, mother of six-year-old CF fighter Sophia Schulz, talks about the challenges of living with cystic fibrosis, newborn screening, KALYDECO® and advances in CF research on CHCH News. Katie also talks about CARSTAR’s Great Strides™…

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A World Without Cystic Fibrosis Site
May 8, 2015

This year for Cystic Fibrosis Awareness Month, we created a space where you can share your videos, photos or written messages about what a world without CF would look like to you. We invite the entire CF community of doctors, patients and family…

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