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Health Canada approval of transformational cystic fibrosis medication brings hope to CF community
June 18, 2021

The cystic fibrosis community is closer to its goal today as Health Canada announced the approval of Trikafta for sale in Canada, issuing a Notice of Compliance (NOC). Considered the single greatest innovation in the history of cystic fibrosis, Trikafta is a transformational drug that can change the lives of up to 90% of Canadians with cystic fibrosis. 

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Cystic Fibrosis Canada calls on Prime Minister and Health Committee to investigate Patented Medicine Prices Review Board
June 4, 2021

Building on a flawed consultation process, Regulatory Agency marginalizes and discredits CF patients, who they are meant to protect.

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Cystic Fibrosis Canada and iMD Health Global announce partnership to provide credible health resources into the hands of care providers and their patients across Canada.
June 2, 2021

Cystic Fibrosis Canada is pleased to announce an important partnership with iMD Health Global (iMD), a CloudMD Software & Services company focused on health education, to provide credible resources regarding cystic fibrosis on the iMD platform This partnership provides increased access to thousands of healthcare providers and patients wanting to better understand the standards of cystic fibrosis (CF) care.

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Letter to the Right Honourable Prime Minister Trudeau
May 27, 2021

A letter has been sent to the Right Honourable Prime Minister Justin Trudeau regarding the regulatory agency marginalizing and discrediting CF patients, who they are meant to serve.

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CF Voices Under Fire from Regulatory Agency Meant to Serve Them
May 26, 2021

On May 22, 2021, a communications plan and associated budget of the federal agency, the Patented Medicine Prices Review Board (PMPRB), was made public by Tom Kmiec, MP following an Access to Information and Privacy request. From it, Cystic Fibrosis Canada learned of the PMPRB’s plan to use its resources, power and $56,000 of taxpayer money to malign the very stakeholders it is supposed to serve, specifically patients, patient groups and elected representatives. In fact, the cystic fibrosis community was named specifically as ‘opponents’ spreading ‘disinformation through organized public relation campaigns.’

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Cystic Fibrosis Canada calls on Provinces to end the wait and make vital CF drugs available now
May 11, 2021

As many in this country face a painful wait for COVID-19 vaccines that could save their lives, they are experiencing the reality of what Canadians living with cystic fibrosis (CF) have endured for years. May is Cystic Fibrosis Awareness Month and Cystic Fibrosis Canada is working to urgently get access to transformative cystic fibrosis drugs that are available around the world, but not in Canada. Cystic Fibrosis Canada is calling on provincial governments to make life-saving CF drugs available to everyone who needs them now.

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17th Annual Walk to Make Cystic Fibrosis History Goes Virtual, Again
May 1, 2021

With the continued risk presented by the global COVID-19 pandemic, Cystic Fibrosis Canada has once again changed its signature fundraising event, the Walk to Make Cystic Fibrosis History, to a virtual format. This year, Cystic Fibrosis Canada is proud to present the 2021 virtual Walk to Make Cystic Fibrosis History’s Further campaign.

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Introducing Cystic Fibrosis Canada’s 2020-2021 Impact Report
April 30, 2021

Today, we are pleased to share our 2020-2021 Impact Report. In this report you will read about our advocacy work, research and healthcare initiatives and our response to the COVID-19 pandemic as well as stories from our amazing CF families and volunteers. 

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Letter to decision makers: Canadians with cystic fibrosis need the COVID-19 vaccine now
April 23, 2021

As the COVID-19 vaccination rollout plans continue to unfold, we ask that you ensure the people in your province diagnosed with cystic fibrosis (CF) and their caregivers are vaccinated now.

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CF Patients and Parents Push Provinces for Public Access to Life-Changing Medicines
April 12, 2021

Today, Cystic Fibrosis Canada is officially launching the #CFcantwait Provincial Meeting Challenge, through which we are calling on our community members to  meet with as many provincial elected officials as possible across Canada, from April to June 2021 as part of our fight for access to life-changing medications, including Trikafta, for the Canadian cystic fibrosis (CF) population.  

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