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“Enjoying the Moment” Takes on a Whole New Meaning for People with Cystic Fibrosis
December 1, 2020

TORONTO (December 1, 2020) – Cystic Fibrosis Canada is proud to announce the launch of its fifth annual Year End fundraising campaign, Moments. The campaign features three Canadian families/ individuals who are affected by cystic fibrosis (CF), their hopes for the future and moments that they hold dear. Running until December 31, 2020, the campaign will help to ensure that Cystic Fibrosis Canada’s critical work to lengthen the lifespan and improve the lives of people living with cystic fibrosis can continue. Donations will be matched up to $150,000 until December 31 thanks to two private donors.

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New standards of care made available today by Cystic Fibrosis Canada
November 30, 2020

TORONTO (November 30, 2020) - Today, Cystic Fibrosis Canada launched the first in a series of new standards of care and guidelines related to the treatment of cystic fibrosis including Antibiotic Dosing Guideline for Cystic Fibrosis and Canadian Consensus Statement on Aerosolized Antibiotic Use in Cystic Fibrosis. These guidelines were developed with a Canadian focus, building on the current depth of knowledge and expertise of Canadian clinicians while leveraging other international research. 

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Impact of COVID-19 on Cystic Fibrosis Patients Examined in Global Report
November 9, 2020

TORONTO (November 9, 2020) - A new study recently published in the Journal of Cystic Fibrosis suggests that although the outcomes of COVID-19 in individuals living with cystic fibrosis (CF) were not as severe as originally feared, there is still a range of possible clinical outcomes following a diagnosis, and an indication that the novel coronavirus is not a benign virus for people with cystic fibrosis.

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Life-changing treatment, Trikafta, is coming to Canada
November 9, 2020

TORONTO (November 9, 2020)– Today the cystic fibrosis story is significantly changing, with a long-awaited transformational therapy now in sight for Canadians living with the disease. Cystic Fibrosis Canada has received information that a  decision has been made by the manufacturer to bring new CF medicines to Canada.

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Cystic Fibrosis Canada Hosts Historic Emergency All Party Meeting on Access to Trikafta
October 23, 2020

Approximately 30 Members of Parliament and Senators from all parties today met with cystic fibrosis advocacy groups to discuss how to get Canadians access to the breakthrough cystic fibrosis (CF) drug Trikafta in an historic all party meeting that was hosted by Cystic Fibrosis Canada.

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Cystic Fibrosis Canada joins inter-charity coalition to “Protect Our Access”
October 21, 2020

TORONTO, October 21, 2020— Cystic Fibrosis Canada is working with health charities and patient groups to launch a campaign to ensure Canadians are not denied access to breakthrough drugs, like the cystic fibrosis (CF) drug Trikafta. The campaign aims to influence policy and increase public awareness of the proposed changes to the Patented Medicine Prices Review Board (PMPRB) guidelines and their impact on Canadians.

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Position on barriers to access to break-through CF drug Trikafta in Canada
September 22, 2020

Introduction: Cystic Fibrosis Canada and the cystic fibrosis community, including more than 50 cystic fibrosis clinicians, have been reaching out to Members of Parliament calling for change as part of our relentless efforts to get immediate access to the break-through cystic fibrosis drug Trikafta and avoid preventable deaths among the Canadian cystic fibrosis community.

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OPEN LETTER to elected officials and policymakers in Canada’s drug review and reimbursement system from cystic fibrosis clinicians
September 17, 2020

An open letter from Canadian cystic fibrosis clinicians calling upon the government to take action for Trikafta now. 

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Clinical Trials Network Now Covers More Than 60% of Canadian CF Population
September 4, 2020

TORONTO, September 4, 2020Cystic Fibrosis Canada is proud to announce the expansion of the Cystic Fibrosis Canada Accelerating Clinical Trials Network (CF CanACT) from six sites across Canada, to ten.

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New Research Shows 15% Reduction in Cystic Fibrosis Deaths by 2030 If Trikafta is Made Available Now
August 24, 2020

TORONTO, August 24, 2020 - Cystic Fibrosis Canada is imploring the government to take action given new research published today that demonstrates that access to the cystic fibrosis (CF) drug Trikafta in 2021 would result in profound health improvements for people living with cystic fibrosis who take the drug. By 2030 Trikafta could reduce the number of people living with severe lung disease by 60% and reduce the number of deaths by 15%.

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